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    We are a Foundation working for children who are diagnosed with a Congenital Heart Defect. We provide financial resources for heart treatment for underprivileged children within the age group of 0-18 years and from families with a monthly income that does not exceed Rs 20,000

    WE SAVE LITTLE HEARTS

    Hope

    We care for critically ill children by identifying those who are in urgent need of medical care under our focus area - Congenital Heart Defects. As a Foundation working for children and heart disorder treatment in India, we work directly and closely with the families, guardians, and doctors to provide not only timely, but the best available treatment. Our kid's stories and videos are a directory of all the brave little kids we have treated till date.

    Our Kids

    kids videos

    CARE

    Treatment of critically ill children is dependent on a network of doctors, hospitals and pharmaceutical companies who are committed to save little hearts and help in improving CHD treatment in India. Being a children’s healthcare foundation, we work closely with our medical network pan India to provide adequate support to GF beneficiaries. Our partnerships are graced with the best hospitals, doctors, and support staff in India.

    hospital Partners

    Medical Board

    GIVE

    Our children's healthcare Foundation is sustained by our donors and partners. It is a devoted community that whole-heartedly believes in our cause to care for critically ill children with Congenital Heart Defects. We encourage and support fundraisers, CSR donations, corporate payroll giving initiatives, events, seminars as well as other awareness initiatives and donor-driven campaigns for heart disorder treatment in India.

    Our Fundraisers

    Partners And Supporters

    LEARN

    Being a children heart foundation, we continue to build a repository of valuable information on Congenital Heart Defects for awareness on heart disorder treatment in India. It helps us in staying current and aware. Along with being a glossary on the situation of this life-threatening ailment in India, our reports also outline our landmark achievements with treatment of critically ill children diagnosed with CHD.

    Congenital Heart Defects

    Our Reports

    OUR STORY

    Our Founders

    OUR FOUNDERS

    Prema and Jyoti Sagar lost their second-born child Sameer, to a Congenital Heart Defect on December 20, 1983, within 16 hours of his birth. It took them a long time to recover, and they spent a lot of time wondering why? But with no answers, they faced a vacuum of sadness. In time, they began working at Missionaries of Charity, which gave a whole new meaning to their life. It became the seed through which their journey started, as they felt they could reach out and assist in the best way possible - enriching the lives of others and their own. They met two children - Sheela and Ravi at Missionaries of Charity, who further changed their lives and inspired them to start a children’s heart care foundation in India. Now, there is no end to this journey to give life a chance.

    Sheela's Story

    SHEELA'S STORY

    Sheela (name changed) the daughter of a poor farmer was only 12, when she contracted a disease that left her facial features severely deteriorated. Missionaries of Charity blessed her life as they took her under their wing, cared and looked after her for over a decade. Our Founders stepped in and contacted a non-profit organization in the USA, raising money for child surgery, so she could get corrective plastic surgery. It transformed her life, allowing her to eat and breathe properly. Today, 17 surgeries later, she is happy and doing well with her new family - Sheela got married and has two healthy boys. They live in Ontario, Oregon in the USA. It is success stories such as this one, which have always stayed close to Prema & Jyoti’s heart, and their will to Save Little Hearts.

    Ravi's Story

    RAVI'S STORY

    Ravi's (name changed) birth father, a tea stall owner in a drunken stupor threw him into a dry well. At only seven years of age, he broke and dislocated every major bone in his body. He was taken to an orphanage and then with the help of a friend - Eugene Mihaly, we reached out to Ravi and contacted Shriner's Hospital for Crippled Children in the USA - where he underwent multiple surgeries and physiotherapy. He found a happy ending with an American family who adopted him and welcomed him with open arms. He went to school, and even learnt how to swim. Unfortunately, we lost Ravi on October 24, 2012 but his legacy lives on through our children heart foundation India, as we ensure every child’s right to get timely medical treatment.

    OUR Team

    Trustees

    Trustees
    Team

    Team

    OUR KIDS

    GENESIS FOUNDATION | A SHORT FILM

    Saving Lives, One Heart at a Time

    PARENTS TESTIMONIALS

    Aarya

    Supported By

    Collective Good Foundation- WIPRO GE

    Baby of Balvinder

    Supported By

    Mother's Day campaign + KRBF 2019

    TANAY

    Supported By

    Supported By - Individual donors

    Shivay Mishra

    Supported By

    Lal Family Foundation

    Baby of Nisha Tiwari

    Supported By

    Mr Tushar Malhotra & Quik Relations

    Rudravelan

    Supported By

    Oracle India

    Piyush

    Supported By

    The Himalaya Drug Company

    Durgam Srivalli

    Supported By

    Collective Good Foundation- WIPRO GE

    Rayyan Ansari

    Supported By

    Springer Nature India Pvt. Ltd.

    Shadaan Sajid

    Supported By

    WPP India CSR Foundation

    Naaz Begum

    Supported By

    WPP India CSR Foundation

    Baby of Rekha

    Supported By

    WPP India CSR Foundation

    Umme

    Supported By

    Individual donors

    LANDMARK SURGERIES

    Story of Nitesh

    STORY OF NITESH (NAME CHANGED)

    8-year-old Nitesh (name changed) from Tamil Nadu, started experiencing breathing difficulties while playing. He was taken to a pediatric cardiologist, where he was diagnosed with severe aortic regurgitation—a condition where the aortic valve is leaky and does not close properly. His mother, a single parent and daily wage worker, was informed about the treatment options. A mechanical valve replacement was one option but came with challenges like the need for lifelong blood thinning medication, regular blood tests, and multiple surgeries as he grows. Given these limitations, doctors recommended a Ross procedure. In this surgery, the child's own pulmonary valve is used to replace the diseased aortic valve, and a donor valve is placed in the pulmonary position. The advantage of this procedure is that the valve grows with the child, reducing the need for future surgeries and long-term medication. With his mother unable to afford the surgery, we stepped in to offer the financial assistance needed for his treatment. Nitesh underwent the Ross procedure at our partner hospital in Coimbatore with the help of our CSR donor. The surgery was performed successfully with the assistance of visiting cardiac surgeon from Mayo Clinic, USA. Nitesh recovered well after surgery and was discharged in stable condition.
    Story of Navneetha

    STORY OF NAVNEETHA (NAME CHANGED)

    10-year-old Navneetha (name changed) was diagnosed with dysplastic bicuspid aortic valve (BAV) with severe aortic stenosis. After experiencing serious symptoms like fainting and breathlessness, she was evaluated by a child’s cardiac team at an outreach camp in Cuddalore. Coming from a financially disadvantaged background, we stepped in to provide financial aid for her surgery. Navneetha underwent open-heart surgery—a ROSS procedure—at our partner hospital in Chennai. In this procedure, the aortic valve is replaced with the patient’s own pulmonary valve, and a donor valve is used to replace the pulmonary valve. Since the child’s own tissue is used in the aortic position, the valve grows as the child grows. ROSS procedure is quite complex and is done only in a few centers in the country. The alternative is replacing the aortic valve with a mechanical valve, but this comes with several disadvantages. A mechanical valve does not grow with the child, meaning it would become ineffective as the child grows into an adult. The child would need to be on anticoagulant medication for life, which requires regular blood tests. Managing anticoagulation during pregnancy can also be risky. Because of these challenges, ROSS procedure is considered better for children with aortic valve disease.
    Story of Sundar

    STORY OF SUNDAR (NAME CHANGED)

    2-year-old Sundar (name changed) had been suffering from noisy breathing (Stridor) since birth and required multiple hospitalizations for respiratory infections. An Ultrasound test showed that he had a right-sided aorta, which is normally located on the left side of the body. Further tests revealed a rare congenital defect called vascular ring. This condition occurs when the aorta is positioned unusually (in this case, right-side), and a part of it (called Kommerrell diverticulum) bulges and presses against the windpipe (trachea) and food pipe (esophagus). Given the complexity of his condition, surgery was the only option, but his family, daily wage laborers, could not afford the treatment. With the help of Genesis Foundation and donors, Sundar underwent a high-risk open-heart surgery, where the compressing blood vessels were detached. To avoid future recurrence, the descending aorta was translocated into the ascending aorta. The surgery lasted seven hours and he was discharged on the 10th day. He continues to do well post-surgery. This case is one of the very few successfully performed, offering hope for children with similar rare conditions.
    Story of Pritika

    STORY OF PRITIKA (NAME CHANGED)

    7-year-old Pritika (name changed) suffered from a bluish discoloration and struggled to breathe from a very young age. An Echo revealed that she had a combination of congenital heart defects - Tetralogy of Fallot, Pulmonary Atresia and MAPCA dependent Pulmonary circulation. This combination of defects made her condition fragile. Inspite of this condition, she could not get timely treatment as her father, an owner of small grocery store could not afford the treatment. With the support of our CSR partner CH Robinson, we were able to support her treatment at Rabindranath Tagore International Institute of Cardiac Sciences, Kolkata. Since she got operated at an older age her chances of a cardiac failure were very high. She was operated upon successfully and now continues to heal and grow.
    Story of Shalini

    STORY OF SHALINI (NAME CHANGED)

    Shalini (name changed), a 10th standard student hailing from western part of the country, was diagnosed with a rare and serious condition known as Ruptured Sinus of Valsalva (RSOV) to Right Atrium (RA) with heart failure and severe Pulmonary hypertension. For 3-4 months she was experiencing palpitations, Dyspnea and fatigue. Since this condition is seen mostly in adults, it was an unusual situation for the doctors to see a teenage girl presenting it. She needed immediate attention to heal this defect. But, her mother, being the sole earning member, was unable to pay for the medical treatment. We were able to support this intervention and she was treated in our partner hospital in Hyderabad. Shalini was discharged in a stable condition and is now doing well.
    Story of Baby of Deena

    Story of Baby of Deena (Name Changed)

    Meet the courageous baby born to Deena, a shining light of hope during tough times. At a mere two days old, this little fighter was diagnosed with Transposition of Great Arteries with Intact Septum, a complex heart condition. The medical team at our partner hospital in Coimbatore quickly acted and performed a special surgery called Arterial Switch Operation that saved baby's life. The surgery was critical and it was performed withing the first week of life and without this the child would continue to experience a lack of oxygen in the body and would have possibly lead to a heart failure. The early intervention was critical in saving this baby’s life. He is doing fine and making his way towards a healthier future. As time goes on, this amazing story keeps inspiring us and showing how timely interventions can make big changes in people's lives.
    Story of Baby of Sony

    STORY OF BABY OF SONY (NAME CHANGED)

    A nine days old baby girl, Baby of Sony hail from Haryana (Originally from West Bengal). She was brought to the emergency department of Artemis Hospital in Gurugram as she presented with congestive heart failure and acute renal failure. After performing the emergency medical management in the ICU, the doctor recommended immediate surgery which was of high risk. She was diagnosed with Interrupted Aortic Arch AP window, a critical congenital heart defect. In babies born with an interrupted aortic arch, oxygen-rich blood from the left side of the heart is not able to reach all areas of the body. Her father works a driver with a monthly income of Rs. 10,000. He could not bear the cost of extensive treatment which included surgery along with a long ICU stay for the baby. The hospital approached us for support. With our partnership with ACRE, the surgery was successfully done, and the baby got discharged in a stable condition.
    Story of Kanimozhi

    Story of Kanimozhi (name changed)

    A 3-month-old Kanimozhi is the youngest child in the world to undergo a Tetralogy of Fallot correction with Cor Triatriatum repair surgery. Cor Triatriatum is an extremely rare congenital heart defect present in approximately 0.1% of children born with a heart disorder. A normal human heart has 4 chambers. Pulmonary veins carry pure blood from the lungs to the left heart from where it is pumped out to the rest of the body. 3-month-old, Kanimozhi (name changed), however, had an extra chamber above the left atrium of her heart, causing her Pulmonary veins to get terminated in the extra chamber, leaving her body deprived of oxygen-rich pure blood. In addition, she also had a Tetralogy of Fallot, another rare condition caused by a combination of four heart defects that are present at birth. This defect, affecting the structure of the heart, causes less impure blood to flow to the lungs for purification. Thus, the oxygen content in the blood is low. She went through a surgery at our partner hospital in Coimbatore and is now doing fine.
    Story of Mehul

    Story of Mehul (name changed)

    6 months old Mehul (name changed) was born with a rare combination of Congenital Heart Defects – D- Transposition of Great Arteries, Ventricular Septal Defect and Pulmonary Stenosis. Due to this complex condition, at 6 months of age Mehul weighed less than 3.5 kilograms. His oxygen levels, at 40-45 per cent were not very good, preventing him from being able to thrive and grow. Due to Transposition of Great Arteries, the two major arteries that carry blood away from the heart -- the aorta and the pulmonary artery -- are switched or transposed from their normal positions. As a result, Oxygen-poor (blue) blood is sent to the body instead of to the lungs and Oxygen-rich (red) blood returns to the lungs instead of going to the body, leading to the body being deprived of good oxygen levels. In addition to this defect, Mehul also had a hole between the 2 lower chambers of the heart causing rich and oxygen poor blood to mix. Also, the Pulmonary Valve of the child was extremely narrow. Mehul underwent a Réparation à l’Etageventriculaire (REV) procedure at our partner hospital in Coimbatore. He has now been discharged and is doing well.
    Story of Fauzia

    Story of Fauzia (Name Changed)

    4 months old Fauzia (name changed) is the youngest child in India to undergo a complete surgery for Teratoma. Suffering from a lower respiratory tract infection, she was diagnosed with a big mass in the chest. Fauzia was having trouble breathing and while feeding. The pediatrician referred her to our partner hospital in Kochi. An echo and CT revealed that the child had a big mass of tumor which was covering the Aorta, Pulmonary Artery and was displacing the heart towards the left Pleura. The tumor was diagnosed as Teratoma, an extremely rare defect found in children. Her surgery was performed successfully, and she has been discharged in a stable condition.
    Story of Thomas

    Story of Thomas (name changed)

    A 18 months old baby, Thomas (name changed) went through an ICD implantation at our partner hospital in Coimbatore. This is the first time this procedure has been done on such a young child. After multiple evaluations, he was diagnosed with a rare defect called Long QT Syndrome. This condition results in frequent cardiac arrhythmias (rapid beating of the heart often described as palpitation by older children and adults). Thomas’s father works in a grocery store.
    Story of Sakshi

    Story of Sakshi (Name Changed)

    At 2 months of age, Sakshi (name changed) is one of the smallest children in India to undergo a device closure of Aorta Pulmonary Window in our partner hospital in Thane. This is an extremely rare congenital heart defect leading to more than normal amount of flow of blood to the lungs causing excess pressure there. For Sakshi, the defect was closed with a device that was implanted in her in the cath lab instead of undertaking an open heart surgery. she weighed only 2.9 kilograms at the time of this procedure.
    Story of M Dhanushya Shree

    Story of M Dhanushya Sree

    At 6 months of age, M Dhanushya Sree was born with a rare combination of two very complex defects - Aorta Pulmonary Window and Interrupted Aortic Arch. In this condition, on one hand, there is an excess of blood flow to the lungs which increases the lung pressure due to the Aorta Pulmonary Window. On the other hand, there is less pure blood flowing to the lower body because of the aortic arch obstruction. Both the surgeries were successfully undertaken at our partner hospital in Coimbatore.
    Story of Ayisha Eshal Nishad P

    Story of Ayisha Eshal Nishad P

    Ayisha, the daughter of a tempo driver, was born with Ectopia Cordis. This is a rare and challenging congenital defect where the chest walls that protect the heart are not formed properly. Having undergone this surgery at 42 days of age, Ayisha became the youngest child in Kerala to get this treatment. The surgery was conducted in Kochi.
    Story of MahaLakshmi

    Story of Baby of Mahalakshmi

    Baby of Mahalakshmi, daughter of a cowshed worker, is the smallest baby in India to undergo a complete repair for Pulmonary Atresia. She was 8 days old when she underwent the procedure in Coimbatore. This was a landmark surgery as the pathway from the right ventricle to the lungs was developed in a single procedure instead of staged surgeries.
    Story of Navinasri

    Story of Navinasri

    For 4 year old Navinasri, the daughter of a labourer, the right pathway to the lungs from the right ventricle was not developed. Her surgery was unique as she is the youngest patient in the world who underwent an Ozaki procedure on the right chamber of the heart to recreate the Pulmonary Valve. The procedure was done in Coimbatore.
    Story of Muhammad Riban Malik

    Story of Muhammad Riban Malik

    Muhammad Riban Malik, son of a hotel worker, is the youngest baby in India to have a cardiac mass removed from the Left Atrial Appendage. He was born with a unique condition called Ectopia Cordis. In this condition, the chest walls that protect the heart were not formed properly. The surgery was successfully done at our partner hospital in Kochi. He was only 16 days old when the procedure was conducted.
    Story of Baby of Priya

    Story of Baby of Priya

    Baby of Priya is the daughter of a labourer. She was only 4 days old when a Permanent Pacemaker was implanted inside her in Coimbatore. She weighed only 1.6 kilograms. She became the youngest baby to undergo a pacemaker implantation.
    Story of P.Mythili

    Story of P. Mythili

    17 year old P. Mythili’s became the first person in the world where her pulmonary valve was recreated using her own tissues. This is for the first time where an Ozaki procedure has been performed on the right chambers of the heart for a Double Switch Surgery. Her procedure was performed by an experienced team of doctors at our partner hospital in Coimbatore.
    Story of Manjusha

    Story of Baby of Manjusha

    One month old, Baby of Manjusha was diagnosed with an extremely rare condition. He was born with abnormal pathways for the blood to flow to the lungs. Along with this, he also presented with MAPCAS. This is an extremely rare combination of defects. Most children presenting this combination struggle to survive. A very experienced team of doctors at our partner hospital in Kochi, performed both an Arterial Switch Operation and MAPCAS. Both procedures were a success and the baby is doing well.
    Story of Amritha

    Story of Amritha

    11 year old Amritha, the daughter of a driver, is a miracle child whose surgery is one of the first in India where a 3D model of the heart was printed to aid the complex open-heart surgery. She was born with an extremely complex defect. Her heart was on the right side, instead of left side (dextrocardia), ventricles were one-on-top-of-the-other (superior-inferior) instead of being left-and-right, both great arteries arose from her superiorly positioned right-ventricle (double outlet right ventricle), there were two large holes (ventricular septal defects), and her pulmonary artery (which carries impure blood to lungs) was severely obstructed. She underwent this procedure in Kochi.
    Story of Baby of Ayanthy

    Story of Baby of Ayanthy

    Baby of Ayanthy, the daughter of a fisherman was treated for Aortic Arch Repair Type B. This is an extremely rare case of Aortic Arch Obstruction without Ventricular Septal Defect (VSD). In simpler terms it means an obstruction in the ascending Aorta which leads to less oxygen content in the body. She was only 15 days old when she was operated on at our partner hospital in Kochi.
    Story of Dara Kumari

    Story of Dara Kumari

    8 year old Dara Kumari, the daughter of a farmer was diagnosed with a hole in between the lower chambers of her heart. She underwent a successful closure of Ventricular Septal Defect (VSD) at our partner hospital in Hyderabad. The team working with her had to be extra careful as Dara was also visually impaired making the procedure even more challenging.
    Story of Shiv

    Story of Shiv

    Shiv, the son of a labourer, was less than a month old when he was diagnosed with a condition where there was an abnormal connection between the two main blood vessels- the Aorta and the Pulmonary artery. He underwent a Patent Ductus Arteriosus (PDA) Device Closure procedure in Maharashtra. Shiv weighed only 900 grams, making him the smallest premature baby to undergo this procedure.

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    A children's charity is an organization that works towards the welfare of the children. Genesis Foundation is a children’s charity that supports under-privileged children with Congenital Heart Defects (CHD) whose family income does not exceed Rs 20,000 per month. We provide financial aid for the heart treatment of children, giving them a chance at a healthier and brighter future.

    Collaborating with a children’s charity not only allows individuals and organizations to contribute to a noble cause but also allows them to become active participants in solving real-world problems. To get involved with Genesis Foundation on a long-term basis, you can commit to regular donations for heart surgery, fundraise, or volunteer your time and expertise. To know more about how you can join the Foundation, contact us at +91 96506 03438 or write to us at [email protected].

    You can donate for heart surgery free online through Genesis Foundation by visiting Donate Now page. You can donate through Paytm wallets, net banking, bank transfers, payment through cheques etc. 100% donation from individuals are used for the providing financial support to children diagnosed with congenital heart diseases (CHD) without any allocation towards administrative expenses. Genesis Foundation also offers the Power of 100+ and Giving Made Easy program, making it simple and impactful to contribute through monthly donations.