“Our children are our only hope for the future, but we are their only hope for the present and their future” -Zig Ziglar
Children are at the heart of our Foundation. Their strength and resilience to overcome every obstacle in life amazes us each day. From undergoing common symptoms of Congenital Heart Defects like breathlesness, to not being able to accomplish any day-to-day tasks, every child we support has their own battle to fight. Taking care of them at each step, are their families, doctors, nurses and support staff, to ensure they get well soon.
Accounting for each one of their unique stories, this section is a repository of all our beneficiaries over the years.
Each story is a source of hope for us too, because we can witness their transformed lives, as we move one child closer to an India devoid of Congenital Heart Defect related deaths.
Shakti (name changed) was only 900gms when he had surgery for Patent Ductus Arteriosus, a congenital heart defect in February 2018. It took place at a partner hospital in Thane when he was three weeks old. Today he is regular with follow-ups and attending Class 1 at school, weighing a healthy 20kg with a heart full of gratitude and healing.
Anamika (name changed) was suffering from an Atrial Septal Defect, a type of Congenital Heart Defect. She was found to have recurrent bouts of fever and poor weight gain until her surgery in March 2024. Excited to start school in 2025, she is thriving and has won the International Book of Records for reciting numbers 1-10 in five different languages in twenty-seven seconds.
A ventricular septal defect survivor, Vaanika (name changed) from Delhi was operated on when she was thirteen years old. She had regular complaints of breathlessness during any form of activity which went away after intervention. Vaanika kept up with her follow-ups and went ahead to pursue a B.A. (Hons) from S.O.L Delhi University. As of today, she has started her own organization All Education Foundation and teaches lesser privileged children.
Zara (name changed) is a Patent Ductus Arteriosus, a congenital heart defect survivor who was operated on in March 2019 in Delhi at the age of 2. She had frequent bouts of fever and cough along with breathlessness whenever she exerted even a little. Zara’s mother is a true testament of strength as she single-handedly raises seven children. The only one she is able to educate is Zara due to her academic interests as she aspires to be a doctor. Her education is being supported at a personal capacity by our Founder Trustee. Zara is punctual with her follow-up appointments and school.
In India, girls with CHD are often denied treatment due to gender bias. We not only ensure equal access to life-saving care but also run campaigns and storytelling that highlight their journeys—shifting mindsets and empowering girls to dream, study, and achieve their ambitions.
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If you wish to meet a child supported by Genesis Foundation, write to us at contactus@genesis-foundation.net with your location that you would like to visit, we will revert to you as soon as we have a child who has undergone an intervention in a hospital in that geographical location. A member of our team will help in organising and coordinating this visit.
After every child heart treatment, we document the case with post-surgery photographs and family testimonials. Our team stays in constant touch with the family and treating doctors to ensure smooth recovery. We continue to follow up for up to three years, highlighting our commitment as the best NGO in Gurugram working for children’s healthcare.
We ensure due diligence before extending support for children’s heart treatment. Families need to provide the following:
There are several support groups and resources available for families of children with heart conditions in India. Many hospitals and NGOs offer counselling, peer support, and informational sessions. While Genesis Foundation, an NGO for child heart surgery based in Gurugram, does not provide counselling, our team stays in touch with families for up to three years after treatment to monitor the child’s recovery and offer continued support.
Beneficiaries of Genesis Foundation are identified predominantly from the partner hospitals we are partnered with Pan-India, as they conduct outreach clinics and screening camps to identify children with congenital heart defects and then send us cases that fall under our criteria and age-group. The remainder come from word-of-mouth, or our SEO efforts to be more reachable to families searching for answers online.
