{"id":2570,"date":"2021-12-16T07:36:38","date_gmt":"2021-12-16T07:36:38","guid":{"rendered":"https:\/\/www.genesis-foundation.net\/blog\/?p=2570"},"modified":"2025-12-26T17:40:03","modified_gmt":"2025-12-26T17:40:03","slug":"caring-for-children-and-adolescents-with-congenital-heart-disease","status":"publish","type":"post","link":"https:\/\/www.genesis-foundation.net\/blog\/caring-for-children-and-adolescents-with-congenital-heart-disease\/","title":{"rendered":"Caring for children and adolescents with Congenital Heart Disease"},"content":{"rendered":"<p style=\"text-align: justify;\">Children born with a Congenital Heart Disease require special care and attention, for the hole in heart treatment. Especially the caretakers, who need to be sensitized to their needs, even if it\u2019s heart hole treatment without surgery.<\/p>\n<p style=\"text-align: justify;\">Here are a few tips for parents, guardians and caretakers of children and adolescents who have been diagnosed with a Congenital Heart Disease.<\/p>\n<p style=\"text-align: justify;\"><strong>Growth &amp; Nutrition<\/strong><\/p>\n<p class=\"img-float-right max-width-desktop-300\" style=\"text-align: center;\"><img decoding=\"async\" class=\"img-responsive alignleft\" style=\"max-width: 100%;\" src=\"https:\/\/www.genesis-foundation.net\/blog\/wp-content\/uploads\/2021\/12\/Heart-Disease.jpg\" alt=\"Heart\" \/><\/p>\n<ul style=\"text-align: justify; margin-left: 14px;\">\n<li>Being regular with the doctor\u2019s appointments, both the cardiologist and primary care physician. Regular health check-ups are an important part of ensuring the child\u2019s optimal growth.<\/li>\n<li>Unlike adults with cardiac disease, children who\u2019ve had <strong>hole in heart treatment<\/strong> require food with a higher calorie content. But giving large meals at once might make them tired, therefore breaking them up into smaller portions at shorter intervals ensures they get the nutrition they need without exhausting them.<\/li>\n<li>Children with congenital heart disease, particularly left-sided ones tend to grow and gain weight at a slower rate. This tends to get corrected following surgery for the defect.<\/li>\n<\/ul>\n<p style=\"text-align: justify;\"><strong>\u2018Tet spells\u2019 and Oxygen Therapy<\/strong><\/p>\n<p class=\"img-float-right max-width-desktop-300\" style=\"text-align: center;\"><img decoding=\"async\" class=\"img-responsive alignleft\" style=\"max-width: 100%;\" src=\"https:\/\/www.genesis-foundation.net\/blog\/wp-content\/uploads\/2021\/12\/Heart_Disease.jpg\" alt=\"Heart\" \/><\/p>\n<ul style=\"text-align: justify; margin-left: 14px;\">\n<li>In certain cyanotic heart diseases like Tetralogy of Fallot, the child tends to experience \u2018tet spells\u2019 or \u2018hyper cyanotic\u2019 spells. The child would suddenly \u2018turn blue\u2019 around the fingers and mouth, indicating decreased oxygen flow to the peripheries due to increased mixing of de-oxygenated blood with oxygenated blood. With infants, the first signs may be inconsolable crying or irritability.<\/li>\n<li>Tet spells can occur at anytime, most notably in the mornings, after periods of physical activity, emotional stress, fever, dehydration. Although the most common age group is between 2-4 months, it can occur at any age.<\/li>\n<li>The first thing to do in this situation is to put the infant \/child in a \u2018knee-chest position, or a squat. This allows better blood flow from the peripheries to the lung. Sometimes, toddlers instinctively squat when they are experiencing a spell.<\/li>\n<li>In case squatting does not resolve the spell, a child might require oxygen in the form of external tubes attached lightly to their nose or a mask, or hospitalization in severe cases.<\/li>\n<li>To prevent tet spells from occurring, it is important to avoid dehydration and high temperatures when they have a fever.<\/li>\n<\/ul>\n<p style=\"text-align: justify;\"><strong>Infections &amp; Physical Activity<\/strong><\/p>\n<ul style=\"text-align: justify; margin-left: 14px;\">\n<li>Children with congenital heart disease are at a higher risk of acquiring infections of the lung and heart \u2013 most commonly infective endocarditis, which is an infection of the valves in the heart.<\/li>\n<li>To prevent the child from getting infected, dental care and hygiene is a must. Regular appointments with a dentist should be set up to ensure the same.<\/li>\n<li>It\u2019s imperative that children and the adults around them have got all the recommended vaccines. Keeping a track of the child\u2019s medications, and have them take it in a timely manner is necessary.<\/li>\n<li>Most children with congenital heart disease usually have no issues with exercise and can do so as much as any other kid. Whether they\u2019ve had <strong>heart hole treatment without surgery<\/strong> or with surgery, speaking to the doctor before allowing the child to start any form of play or exercise is important.<\/li>\n<\/ul>\n<p style=\"text-align: justify;\">At the Foundation, the HOPE team stays in constant touch with families, to monitor the health of every child that we have supported. Urging families to go for regular follow-ups, the well-being of GF children is the utmost priority for the entire team.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Children born with a Congenital Heart Disease require special care and attention, for the hole in heart treatment. Especially the caretakers, who need to be sensitized to their needs, even if it\u2019s heart hole treatment without surgery. Here are a few tips for parents, guardians and caretakers of children and adolescents who have been diagnosed [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":2581,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-2570","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Caring for children and adolescents with Congenital Heart Disease - Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.genesis-foundation.net\/blog\/caring-for-children-and-adolescents-with-congenital-heart-disease\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Caring for children and adolescents with Congenital Heart Disease - Blog\" \/>\n<meta property=\"og:description\" content=\"Children born with a Congenital Heart Disease require special care and attention, for the hole in heart treatment. 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