{"id":2516,"date":"2021-11-16T12:44:10","date_gmt":"2021-11-16T12:44:10","guid":{"rendered":"https:\/\/www.genesis-foundation.net\/blog\/?p=2516"},"modified":"2025-12-29T05:25:02","modified_gmt":"2025-12-29T05:25:02","slug":"big-stories-of-little-hearts-jayakanth-kshitija-aarohi-and-manthan","status":"publish","type":"post","link":"https:\/\/www.genesis-foundation.net\/blog\/big-stories-of-little-hearts-jayakanth-kshitija-aarohi-and-manthan\/","title":{"rendered":"Big Stories of Little Hearts: Jayakanth, Kshitija, Aarohi and Manthan"},"content":{"rendered":"

The Covid-19 pandemic has affected families in every part of the world, leaving no one untouched. Whether it\u2019s parents, or partners, or children, or relatives and friends, the impact has been felt at varying degrees.<\/p>\n

Similarly, when a child is diagnosed with a congenital heart defect, it unsettles the entire family. And searching for avenues of heart disorder treatment becomes tougher for families from humble backgrounds. At Genesis Foundation, through heart treatment for poor children we ensure that we give life a chance<\/em> for every child, irrespective of their financial background. Helping us in this journey are CSR partners like Himalaya Wellness Company, to see India free from heart defect related deaths. Four such children supported by them, are leading near-normal lives because they received timely heart disorder treatment<\/a>. The unique stories of resilience of these families will encourage you to just keep moving ahead in life.<\/p>\n

Kshitija Sapkale
\n<\/strong><\/p>\n

How often does it happen that you speak with someone over a phone call and the conversation leaves you in tears? My interaction with Kshitija\u2019s family did that and more.<\/p>\n

\"Kshitija\"Kshitija smiling for
\nthe camera<\/i><\/p>\n

Talking to her mother she happily tells me that her daughter is doing good health-wise because a child who couldn\u2019t run earlier, now loves to play pakda-pakdi (catch-catch or tag in English) with all the neighbourhood kids. She says, \u2018She was quiet before the surgery because she used to get tired all the time, but now her whole personality has changed. She enjoys her online phone classes and loves to watch Doraemon and Shin-Chan cartoon.\u2019<\/p>\n

\"Kshitija\"Kshitija\u2019s family, with her
\nelder sister and mother<\/i><\/p>\n

Then speaking with her elder sister who is in Grade 10, Preshita tells me both the sisters share a very close bond. As we continue talking, she also tells me about her mother\u2019s separation from her father, and how her mother has been receiving treatment for esophageal cancer.<\/p>\n

In that moment I felt taken aback, because here I was talking to her mother a few minutes earlier, and she didn\u2019t say a work about her own struggles and kept re-iterating how grateful she felt that her daughter got treated at a private hospital and is living a normal life. Prodding Khitija\u2019s mother to talk more, she tells me, \u2018Everyone has struggles that set them back, but life is such that moving forward is the only option at times. I live with my brother because I cannot work due to my health, I\u2019m ensuring that both my daughters\u2019 study well so they don\u2019t have to suffer in any way. Thea joy of seeing <insert elder daughter name> study for Grade 10 exams and Kshitija play around like a normal child, mutes all my pain.\u2019<\/p>\n

I thank her for talking to me, and salute her silently for showing such strength even in the face of such an adversity.<\/p>\n

Manthan Wankhede<\/strong><\/p>\n

\"Kshitija\"Eldest brother Parshuram, youngest
\nsister Mano, middle child Manthan
\nand younger brother Gautham <\/i><\/p>\n

Before I can even begin talking to Manthan\u2019s mother, the first things she says is \u2018I have three sons and one daughter, eldest is seven, Manthan is four and a younger one who is two years old, and their sister who is almost one year old. So please don\u2019t mind all the background noise and talk as loudly as possible.\u2019<\/p>\n

Naturally it made me laugh as I get to virtually witness all the commotion on the other end of the line. She goes on to tell me that at home everyone lovingly calls him \u2018Lucky\u2019 because he has fought his heart defect. From being a child who would be sick all the time, with blue lips and finger nails, unable to stand, he has come a long way. She says, \u2018Now he doesn\u2019t keep quiet only, talks all the time, jumping from here and there. Fights with me for the mobile all the time because he wants to watch Superman and Spiderman cartoons.\u2019<\/p>\n

\"Kshitija\"Little Manthan posing with
\nhis favourite toy<\/i><\/p>\n

No less than a little hero himself, Manthan\u2019s favourite food is Chinese cuisine and pizza. His mother makes it all at home because his consulting doctor has advised home-cooked meals for him. However, one thing she can\u2019t make at home is the Cadbury milk chocolate, which she says he is crazy about. She tells me that during the yearly visits for his routine heart check-up, his doctor gives him an entire box of chocolates, hence he loves the hospital!<\/p>\n

I ask him about his cartoons, and he tells me that I am Chota Bheem (an Indian cartoon) and he would like to invite me home so we can play together. Overjoyed hearing him invite me home, I promise to see him whenever I\u2019m in Mumbai next.<\/p>\n

\u00a0<\/strong>Aarohi Abhijit Malage<\/strong><\/p>\n

\"Kshitija\"Aarohi sharing her drawing
skills on camera<\/i><\/p>\n

Now in Grade 2, little Aarohi\u2019s cute expression should not be mistaken for a docile personality, in her mother\u2019s words (not mine). \u2018She and her younger sister Ishita fight a lot because they disagree on everything. If one says mango, the other has to say tamarind\u2019, she tells me.<\/p>\n

With online classes going on their mother spends half the day trying to resolve arguments, as the elder one is allowed to access the phone longer than the younger one. But her mother is happy that now at least both girls go to cycle together, because before the surgery Aarohi was always down with cough and cold, and excessive breathlessness.<\/p>\n

\"Kshitija\"Aarohi\u2019s family, with her younger
\nsister and parents<\/i><\/p>\n

She says happily, \u2018If I don\u2019t be strict with these girls, they won\u2019t study because they can play the whole day. In those moments, these two become a team and I\u2019m their enemy\u2019.<\/p>\n

Trying to speak with Aarohi, her fluency in the Marathi language (and my lack of) cuts-short our conversation, as she tries to explain her interest and passion for drawing.<\/p>\n

 <\/p>\n

D Jayakanth<\/strong><\/p>\n

Excelling in school, fond of kho-kho, hide and seek, and in love with jalebis (an Indian sweet), Jayakanth is your average ten-year-old, except he wasn\u2019t always.<\/p>\n

\"Kshitija\"Little Jayakanth looking
\nintensely at the camera<\/i><\/p>\n

As a young child, he endured multiple episodes of cough and cold, and his parents kept running to the doctor every now and then. His breathlessness did not even allow him to play. But after one surgery, he is now leading a normal life of a pre-teen boy. Fond of watching Tamil movies, his favourite actor is Vijay. I ask him if the esteemed, highest earning South Indian actor and singer is his inspiration to get into acting?<\/p>\n

And he coyly tells me, \u2018I like him, but I don\u2019t want to become like him. I want to become like me.\u2019<\/p>\n

As I say goodbye to him and his family, I think about his unexpected response. His sense of self-esteem makes me wonder why adults stop nurturing self-assurance as we grow up.<\/p>\n

Working for an NGO that provides heart treatment for poor children<\/a>, I always look forward to interacting with these children and their families, as each one of them give me a glimpse of their transformed lives.<\/p>\n","protected":false},"excerpt":{"rendered":"

The Covid-19 pandemic has affected families in every part of the world, leaving no one untouched. Whether it\u2019s parents, or partners, or children, or relatives and friends, the impact has been felt at varying degrees. Similarly, when a child is diagnosed with a congenital heart defect, it unsettles the entire family. And searching for avenues […]<\/p>\n","protected":false},"author":1,"featured_media":2520,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-2516","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"yoast_head":"\nBig Stories of Little Hearts: Jayakanth, Kshitija, Aarohi and Manthan - Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.genesis-foundation.net\/blog\/big-stories-of-little-hearts-jayakanth-kshitija-aarohi-and-manthan\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Big Stories of Little Hearts: Jayakanth, Kshitija, Aarohi and Manthan - Blog\" \/>\n<meta property=\"og:description\" content=\"The Covid-19 pandemic has affected families in every part of the world, leaving no one untouched. 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