Navigating the emotional journey: Supporting Families of Children Suffering from Congenital Heart Defect
February 6, 2025 | Contributed by Divyanka Vig
Having a baby is a special, a life-changing experience. However, families face unique challenges when their baby is born with a congenital heart defect. Congenital Heart Disease (CHD) in children can be a challenging diagnosis for parents and caregivers, especially since the disease can often be present without any symptoms. It requires a mix of medical management, emotional support, and lifestyle adjustments to ensure the best possible outcomes for the child. Coping with the complexities of CHD demands patience and carefulness.
As Matt Walsh said, “Parenting is the easiest thing in the world to have an opinion about, but the hardest thing in the world to do.”. A relationship of the child with the mother is from the day the child has been inside the womb. Seeing the child suffering from the pain and still being the strongest is one of the emotions that only parents can experience.
Childbirth is one of the invaluable human experiences and is associated with parental happiness. During the diagnosis of the child with CHD the parents might experience depression and anxiety. It is not unusual to feel alone or isolated when you find out your child has a heart defect. You may feel a range of emotions, including sadness, fear, guilt and confusion. When a child is born with congenital heart disease, it creates emotional and mental distress. Being emotionally weak can be the most common experience of the parents of the children suffering from CHD.
This is where Genesis Foundation steps in- an NGO for heart treatment in India providing support to the families navigating the challenges of parenting children with congenital heart disease. From talking to the family to going on field to meet the family members and the child. The parents just want an assurance that their child will recover and return to his/her healthy, normal life.
The happiness on the parents’ faces after seeing their child getting treated is blissful. Your help makes a difference. When you choose to give to a charity – no matter how big or small that charity is – you’re helping to make a real difference. If you wish to donate to an NGO, consider supporting Genesis Foundation, an NGO for child heart surgery dedicated to ensuring that no child is denied treatment due to financial constraints.
If you want to learn more about how you can contribute to the NGO’s mission and help save a child’s life, visit Genesis Foundation.
