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The Story of Baby of Benacir Banu

Baby of Benacir is yet another special case that has come to light at our children’s health care foundation – GENESIS FOUNDATION. Mohammed Pahyas and Benacir Banu have been married for five years and always promised each other that whatever life throws at them, they will not be disheartened and fight on together as a team. It hasn’t been easy living a life from hand to mouth, but they have never let it weaken their spirits.
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Kids Supported

Baby of Bhavana

Baby of Bhavana, only eight days born from Palakkad district, in Kerala has been diagnosed with an Atrial Septal Defect (ASD) and urgently requires an Atrial Switch Operation. This procedure has been scheduled at Amrita Institute of Medical Sciences, in Kochi. Her mother Bhavana and father Doraram have four children, and Doraram earns Rs 9000 as month as a salesman. One can only imagine how difficult it is to manage a big family and its day-to-day needs with a tight budget. Arranging the money for the surgery is close to impossible for the family so they have reached out to us for support.

Sonaskhi

Sonakshi, one year old from Agra, is suffering from narrowing of the Pulmonary Valve since she was born. This needs to be opened through a ballooning procedure which will be conducted at Apollo Hospital, in Delhi. Her father Rajat is a driver and earns Rs 5000 per month. The family needs financial support tomake all the necessary medical payments, to give Sonakshi a chance to live with a healthy and happy heart.

Baby of Mari Lakshmi

Baby of Mari Lakshmi four-month-old daughter is the second child born to her and her husband, Arvind Kumar. The couple from Madurai, Tamil Nadu were shocked to learn that their daughter was born with a complex heart problem. She had TOF Physiology with no Pulmonary Valve i.e. Pulmonary Atresia. She was dextrocardiac as well, which meant that the baby's heart was on the right side of the body instead of the left side. Eight days after her birth the parents noticed that the baby had severe breathing problems. They took the child to a nearby government hospital, where they were advised to take her to a private hospital in Tuticorin. The hospital did not offer much hope for the child, and the parents returned dejected. A doctor in Madurai conducted an echo and explained the problem to the parents and then asked them to take the child to Amrita Institute. When she was just 21 days old the parents took the child to Amrita Institute, travelling for 8 hours in an ambulance. The baby had very low saturation of 60%. As an emergency procedure, Dr Krishna Kumar performed PDA stenting on the baby so that she could be saved. PDA (Patent Ductus Arteriosus) is a hole which helps in flow of blood between heart and lungs when the child is in the womb and the blood vessels are not fully developed. Generally, the PDA closes on its own after the birth of the child. In PDA stenting a stent is placed across the PDA so that the PDA does not close and there is some flow of blood to the lungs. After the procedure the baby was discharged, and the parents were asked to follow up routinely. About a month back the child's saturation started falling. It came down to 80%. Left alone the child would have collapsed. The parents brought the child to Amrita Institute once more. She has to undergo a second stage of surgery called Bidirectional Glenn. In Bidirectional Glenn the Superior Vena Cava bringing impure blood from the upper part of the body to the right side of the heart is directly connected to the lungs. As a result, there will be more impure blood flow to the lungs and the oxygen content of the body will increase. The child's father is an electrician earning Rs 6000 per month. The parents were in no position to afford a second surgery. The case was referred to us and child underwent surgery on 28th November and has since recovered. The parents were exceedingly grateful to us and WPP India CSR Foundation, who financially supported this case. They now want for their little one to become paediatric cardiologist in the future as there is a severe shortage of paediatric cardiologists in India.

Erwan

Erwan, six years old from Tamil Nadu, is suffering with a heart disorder called an Atrial Septal Defect (ASD) where there is a hole between the upper chamber of the heart. This has been scheduled at Miot Hospital, in Chennai. His father Eswaran is a farmer and earns Rs 6000 per month with which he supports his wife and two children. They need financial support to ensure that Erwan gets the surgery required so he can live the life he rightly deserves.

Umme Aiman

Umme Aiman, 7 years old resides near Patna with her mother and grandfather. She was born with a congenital heart disorder called Tetralogy of Fallot (TOF) and heartbreakingly her father deserted the family soon after. Umme and her mother are supported by the grandfather who is a mechanic and brings home Rs 6000 per month. Naturally, high medical costs are extremely difficult for him to bear and they have needed and continue to require support. In 2015, Umme underwent a surgery at Max Hospital, which was supported by us, and she was discharged in a stable condition. It had been advised by doctors that she needed to be on long-term follow up. Lately, she has been diagnosed to have significant obstruction in the left pulmonary artery. The doctors have prescribed surgery to remove the blockage. We will be financially supporting the costs of this surgery to get her back to school, and her daily activities with a smile on her face.