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kids Supported

Subash

Subash is a three-year-old boy from Tirunelveli, Tamil Nadu, and is the only child in the family. His father, Chinnadurai, is a daily wager, who earns about Rs 7000 per month and his mother Maharasi is a housewife. He was detected to have murmur during an episode of fever and Upper Respiratory Infection when he was only a year old. An echo showed a hole in his heart, and he was advised closure. He was referred to a government hospital in Trivandrum for a free procedure. Due to the long waiting list, the parents consulted Dr Krishna Kumar during the camp at Tirunalveli. Dr Krishna Kumar evaluated the child and confirmed the diagnosis and advised for the procedure to be carried out at Amrita Hospital, in Kochi. The surgery was thus supported by the Aara Project and the child has been discharged in a stable condition.

Gandla Sai Teja

Eight-year-old Gandla Sai Teja is the second child to Godavari and Gangadhar from Nizamabad in Andhra Pradesh. As a school going student studying in Class 2, active and playing with his fellow classmates, neither he nor his parents were aware of his deeply saddening underlying condition. During a routine school check-up, he was detected to have a murmur. Parents were called and were referred to Continental Hospitals in Hyderabad for further evaluation. After an Echo test, it was diagnosed that he had Patent ductus arteriosus (PDA), a persistent opening between the two major blood vessels leading from the heart with Aortic Stenosis, a condition that causes narrowing of the valve in the large blood vessel branching off the heart (aorta). He required open-heart surgery. This news shook the whole family. His father, a farmer earning Rs 7000 per month left no stone unturned to help his child through the treatment. Fortunately, this case came to our notice and through an initiative called the Aara Project, we were able to support his treatment. The surgery was carried out successfully and he was discharged in a stable condition. All is well that ends well, Gandla Sai Teja has joined school again and moved on to a bright future ahead.

Atib

Atib is the oldest child of Ruby and Iftkhar from Moradabad in UP. Around a year ago, Atib spiked a high grade fever for which his parents took him to a local doctor. There he was referred to the district hospital where doctors discovered that he had an irregular heartbeat. An X-ray was carried out and the doctor asked the parents to bring the child back after one year. During the year the child started developing breathing problems. Doctors from Max Hospital visit Bareilly as part of their outreach program. A local doctor informed Iftkhar about this and Atib was taken to the OPD. An echo was done which showed that he had a hole in between the upper chambers of the heart an Atrial Septal Defect (ASD). The parents were told that the child required open-heart surgery in Delhi to close the hole. Ifthkar is a laborer earning around Rs 4000 per month. Where would he raise the money, he wondered to himself. Luckily, we were able to come to this five-year old’s aid, with heartfelt thanks to the Aara Project.

Baby of Naveena

Naveena’s baby boy was born in PVS Hospital, in Kozhikode, Kerala. His CHD was diagnosed soon after birth, when his breathlessness came to the note of doctors. The baby needed emergency Total Anomalous Pulmonary Venous Connection (TAPVC) repair, and the parents were advised to take him to Amrita Institute. The baby was taken from Kozhikode to Kochi in an ICU ambulance, and was accompanied by his father, as well as his doctor. Upon arrival, the baby was received in the IMCU. Since the oxygen saturation of the baby was low, (65%), the baby needed an emergency TAPVC Repair, which was to be done in the next few hours. In TAPVC, all the four Pulmonary Veins from the lungs terminate at the right atrium instead of left atrium, because of which pure and impure blood mix and there is a significant increase in lung pressure. The baby’s father, Prajeesh, who works as an auto driver, earns around Rs 5000 per month thus would have been unable to afford the surgery for his first and only baby. Priyal and Amit Prabhu stepped in, and supported the surgery under the Aara Project, so the surgery could take place smoothly.

Mydeen

Twelve-year-old Mydeen from Tirunelveli Tamil Nadu was had no developmental issues and was apparently asymptomatic. He was incidentally detected to have a murmur during a fever when he was eleven years old and was soon diagnosed with a Congenital Heart Defect known as Coronary Cameral Fistula in which the left Coronary Artery drains in the left atrium. It is a rare Congenital Heart Defect. Mydeen, was examined by Dr R Krishna Kumar in April 2018 during a camp in the Tirunelveli Royal Hospital. The child was advised to undergo unlisted Vascular Plug procedure and the parents were asked to come to Amrita Institute for further management. Mydeen came to Amrita Hospital on 14th May 2018 and the parents were counselled in detail about the need for the procedure by Dr Krishna Kumar. Mydeen’s father, Mr Shahul Hameed, is a Daily Wager, working in a Canteen near to a construction site, earning Rs 8000 per month while his mother Janathilahiya is a housewife. With financial support provided by the Aara Project, the procedure was carried out successfully and the boy was discharged in a stable condition.

Advik Jadhav

Advik Jadhav, born a healthy and second child to Roshni and Deepak Jhadav in Maharashtra brought a wave of delight in the family with his arrival. But all their happiness soon turned into anxiety and apprehension when the kid started showing symptoms of pneumonia and breathlessness when he was just seven months old. He was taken to a local hospital where a diagnosis was conducted . The reports revealed that the child had murmurs in his heart. The parents were referred to SRCC NH Children’s Hospital for further evaluation. Worried about their son’s health, the parents followed the advice without losing time. The echocardiography performed by doctors here found the narrowing of Aortic valve causing irregular blood flow and required ballooning. It was a worrisome situation for the family with a monthly income of only Rs. 8000/-. Aara Project came forward to help the family to get the operation done. Post which, the child was discharged in a stable condition. Advik is leading a healthy and happy life today.

Nabil Sadeque Chous

Losing a mother in childhood is a disastrous incident for a child. When Nabil Sadeque Chous was just 12 years old, he lost his mother. The father, earning a meagre income of Rs. 4000 per month raised Nabil and his elder brother all alone. It was a shattering incident for all three of them. The father-son trio became more compassionate towards each other after the mishap. Nabil was growing fit and fine and was always regular in sports in school. But suddenly one day in 7th grade, he fainted in the school compound. The father rushed him to a nearby hospital initially, but there, the doctors advised him to take the boy to Mumbai. The father borrowed some money to be able to travel to Mumbai. But even there, due to lack of diagnostic tools, the root cause of the problem was not identified. Due to this, the illness of the child continued as it was, and he had to drop out from the school. Fortunately, a friend of Nabil’s father, who lived in Hyderabad came forward to help. When he heard about the kid’s problem, he invited both Nabil and his father to Hyderabad and to finally get the child admitted in KIMS hospital. After the echocardiography and continuous assessment, it was found that the child had large blockage in his Aorta. Aara Project came to support the family financially in this distressed hour and the boy was operated successfully. Nabil has recovered completely and has rejoined the school.

Deepti Sai

When Deepti Sai was born, she immediately developed breathing troubles and was put on C-PAP. Her parents were asked to consult a pediatric cardiologist, and so took her to a government hospital where an echo revealed that she was suffering from tetralogy of fallot (hole in between the lower chamber of the heart and narrowing of pulmonary valve). Medicines were prescribed, and they were asked to come in six months hence. During the time, the child was not gaining weight, and her growth was stunted, which worried her parents. One of their relatives knew a doctor in Miot Hospital, and thus they took Deepti Sai there, where an echo was carried out once more, which confirmed the diagnosis. It was also found that Deepa and Kartik, her parents, were related before marriage (co-sanguineous marriage). Hence Deepti Sai had a chromosomal anomaly as well. The parents were counseled for surgery. Kartik is a supervisor in a small company earning around Rs 5000 per month, had no idea how he would be able to afford the surgery. This is where we stepped in, and under the Aara Project, we’re able to provide financial support for the surgery.

Rahla Fathima

Rahla Fathima is a four-year-old girl from a village in Kasargode, Kerala. Rahla is the second child in the family. She has an elder brother, Rahin, who is studying in Class III. Rahla’s father, Sadique Ali, is a salesman who earns Rs 4000 per month and mother Kamarunnishak is a housewife The Congenital Heart Defect was identified when the child developed fever with cough when she was 45 days old. The baby was evaluated and found to have heart disease but was not started on any medications at that time. She was diagnosed to have a hole in between the lower chambers of the heart (VSD) and was on continuous follow up in several hospitals in Kasargode. Rahla’s father also has congenital heart disease, and thus in her case might have a hereditary factor. She came to Amrita Institute in January 2018. Dr Krishna Kumar consulted the child and advised open heart surgery. Since the family was not in a position to pay the cost, we stepped in and were able to support them via the Aara Project. Rahla has now been operated upon and was discharged in a stable condition.

Muhammed Musthafa

Two-month old Muhammed Musthafa is the fourth child of Ali Palliparamban and Jausira who live in Malappuram, Kerala. Instead of meeting him and celebrating his arrival, the parents were distressed to see him in the ICU because of his heart condition. The doctor advised an early surgery. Working hard as a daily wager to support his three daughters and wife on meagre earnings of about Rs 55,000 a year, Ali just could not understand what was happening. Accompanied by his wife, he ran from pillar to post, hoping that someone would come to their assistance. Their prayers were answered when they reached Amrita Institute two months later where Dr Krishna Kumar diagnosed Mustafa with Ventricular Septal Defect, a hole between the lower chambers of his heart. The doctor performed the surgery, which we could support financially through donations from Charities Aid Foundation America and Aara Project. Musthafa was discharged when his condition stabilized and has lived a healthy life since.

Naju Hamdan

Seven month old, Naju Hamdan was born with a perfect birth weight of 3.2 kg and so the parents were very happy. They were excited about the arrival of their first child in their lives and their home. Their joy was, however, short-lived as during a routine check-up with the Pediatrician a Congenital Heart Defect was detected in the baby boy at a mere age of only twenty five days. The Pediatrician had noticed an abnormality in the breathing pattern of Naju, which had gone unnoticed by the parents. He asked them to get an Echo performed for the baby to rule out any doubts. The reports brought out the news that wreaked a havoc for the couple. Little Naju was suffering from Tetralogy of Fallot, a heart disorder in which not one or two, but four defects were present in the little one. The despaired family brought the child to Amrita Institute of Medical Sciences, in Kochi for surgery. The father who works as an airport worker with a monthly salary of approximately Rs 9000 had no clue as to how to arrange the expenses required for his boy’s treatment. We were informed about the case and decided to help the child at once. With support from funds raised through The Aara Project, we were able to financially support this case and Naju was operated and discharged in a stable condition.

Bunty Kumar

Bunty Kumar, a third child to Savita Devi and Deva Singh from Mumger, Bihar, had breathing problems since birth. Parents constantly remained distressed about their child’s health and consulted a Doctor in Patna. After an Echo, he was diagnosed with Tetralogy of Fallot (TOF), which meant he had a hole in between the lower chambers of the heart and a narrowing of Pulmonary Valve. He was kept on follow up for four years and fainted a couple of months back. When subsequently rushed to the hospital in Patna, he was admitted and stabilised. Doctors in Patna referred the family to Max Hospital, Delhi where they advised for open-heart surgery. Parents, in complete agony, were counselled for surgery. Fortunately, with support under the Aara Project, the operation was carried out successfully and Bunty, who is now 5 years old is a healthy and stable condition.

Sanjay

Sanjay, five months old, is the third child of Manju and Govindan from Villupuram in Tamil Nadu. Fifteen days after birth he developed a fever alongside breathing problems. His parents took him to the district hospital where he was given medicines and referred to a private hospital for further investigation. Here an echo was carried out and it showed that little Sanjay was having a large hole in between the lower chambers of the heart – a Ventricular Septal Defect (VSD). They were again referred to a government hospital, where an echo was done again. Sanjay had poor weight and his growth was delayed. Doctors advised that he needed to be operated upon urgently, as the hole was large, which meant his lung pressure was increasing. The government hospital has no facility for the surgery, and so a doctor asked them to visit Miot Hospital. The parents were counselled on the immediate need for surgery. However, Govindan, being a farmer earning Rs 4000 per month could not afford the cost of the surgery. With the help of the Aara Project, we were able to support little Sanjay’s surgery so that he can go forward to live a healthy life.

Muhammed Hashim

Muhammed Hashim is an eight-month-old baby from Malappuram, Kerala, and is the second child of Anisha Banu and Sameer Valapra. The baby’ s heart condition was detected by chance when during a vaccination at six weeks of age, the doctors detected a murmur. The baby had no history of recurrent respiratory tract infection, cyanosis or spells. An echo carried out at PVS hospital, Kondotty by Dr Rema Devi showed Tetralogy of Fallot (TOF). The baby then went to a trust hospital for free surgery but was put on a long waiting list, so was then seen by Dr Balu Vaidyanathan (Pediatric Cardiologist) and Dr Brijesh P K (CVTS surgeon) during the camp held at Malappuram CRAFT hospital in February 2018. The diagnosis was confirmed, and the baby came to Amrita Institute in March 2018 for a detailed cardiac evaluation. Sameer who works in a stationary shop earning Rs 3000 per month, could not have supported the surgery, but with the help of the Aara Project, we were able to give little Muhammed Hashim a new chance at life.

C Inbarasu

One year old C Inbarasu is the only child born to Pooja and Chinnarasu. The family live together in Tiruvallur, Tamil Nadu. When Pooja was at the start of her third trimester, the Doctor had suspected that her baby might have a congenital heart defect. After the baby was born he was on regular follow up. Eventually the doctor referred the family to Miot Hospital in Chennai for an echo. The test results revealed that he was suffering from D Transposition of Great Arteries (TGA), a type of complex congenital heart defect. What made the situation even worse was that the baby’s left ventricle was regressed (compressed) and so an arterial switch operation was not possible. The doctors decided it would be best to conduct a senning procedure. The costs for this were too much for Chinnarasu to bear as he earns only Rs 6000 per month as a labourer. With funds raised through the Aara project we were able to support the little boy to dream about a healthier and happier future.

Baby of Hajara

Baby of Hajara was born on 26th September 2018 with a normal birth weight of 2.6 kg. The baby’s elder siblings were excited to welcome her – always having wanted to have a little brother to pamper and to play with. But the family’s happiness was short-lived. The baby was barely two days old when he was diagnosed with a congenital heart defect. While the family wanted to hold the baby close in their arms, all they were left with was seeing him struggle in the ICU for the next few days. On the sixth day, the baby was transported to Amrita Institute of Medical Sciences (AIMS), in Kochi via an ambulance. The baby’s care was supervised by Dr Shine Kumar, who received him in IMCU. After an Echocardiogram, it was concluded that the baby had Transposition of Great Arteries (TGA), meaning his Aorta was connected to his Right Ventricle, and his Pulmonary Artery was connected to his Left Ventricle. This was the opposite of a normal heart's anatomy. To correct this, a major surgery was required. The baby’s family could not afford to pay for his treatment on the father’s monthly income of Rs 5000. Help was sought from us. With funds raised through the Aara Project, the baby’s surgery was supported and scheduled on time. He was discharged in a stable condition and the family reunited and happy.

Kalaivani

Thirteen-year-old Kalaivani, is Kasturi’s oldest child. With four children, who she is taking care of single-handedly, Kasturi’s job is not an easy one. Kalaivani’s CHD has been an additional source of concern for Kasturi, who works odd jobs earning around Rs 5000 per month, in Tamil Nadu. When Kalaivani was around six years old, she had a fever for which she was taken to the doctor. The doctor detected an irregular heartbeat and referred her to a private hospital. where an echo showed Kalaivani was suffering from a complex heart defect called tetralogy of fallot (hole in between the lower chamber of heart and narrowing of the pulmonary valve). With financial support from the government and other philanthropic organizations, Kalaivani was able to undergo surgery, and recovered. About six months back she started getting regular headaches, and an episode of a fever that refused to subside, took her to the local doctor again. The doctor referred them to a pediatric cardiologist in Madras Medical Mission, for a detailed evaluation. An echo revealed that there was a narrowing in the left pulmonary artery, and doctors told Kasturi her daughter would have to undergo a procedure to remove the obstruction. Kasturi was in a fix as to where the money would come in from. This is where we stepped in, as was able to provide financial assistance for Kalaivani’s surgery under the Aara Project

Aayat

Aayat is the three-year-old child to Bibi Juli and Mohammed Rahman— who lives in Bhagalpur, Bihar. During vaccination, Aayat was detected to have murmur in the heart. The doctor who detected the murmur advised parents to get a consultation from a private hospital in Patna. In Patna, an Echo was done, and the child was diagnosed with Patent Ductus Arteriosus (PDA) wherein an abnormal connection occurs between the Descending Aorta and Pulmonary Artery. Still, the doctor gave some hope to the parents, stating that there was a chance the ailment might cure on its own. But the distress increased when Aayat started having breathing issues. Though keeping him on medication, parents also consulted Dr Krishna Kumar on 2nd October 2018 in Patna. He suggested that only closure of PDA with a device could save the child now. PDA closure devices are very expensive, and Mohammed Rahman is a labourer and earns Rs 5000 per month. The costs were adding on to the stress. But the family stayed together in this hard time. Funded by Rotary for travel, the family visited Kochi for surgery. Further, through funds raised from our initiative, Aara Project supported his surgery.

Rudra Sainath Rathkar

Rudra Sainath Rathkar is a eight month old child born to Pooja and Sainath living in Parbhani, Maharashtra. When he was only six months old, he developed Pneumonia. He was taken to a local doctor, who during the check-up found that Rudra had a murmur in his heart. The parents of the six month old were deeply concerned and took the child for further evaluation to Sahyadri Hospital. An Echocardiogram was done, subsequent to which the baby was diagnosed with a Ventricular Septal Defect (VSD) – a birth defect in which the two lower chambers of the heart have a hole between them. To plug this hole, an urgent open-heart surgery was required. The plight of the farmers in our country has become well known over the last few years. It is thus not surprising that as a farmer, Rudra’s father could not even imagine being able to afford the surgery on his scanty earnings of Rs 4500 a month. The child’s problem, however, was not going anywhere. The case eventually came into our notice and we initiated the process to provide financial support for Rudra’s treatment. With financial support from The Aara Project, the child received help in time. He was operated upon and his heart has since recovered from the surgery.

Abhishek Somnath Chorghe

Abhishek Somnath Chorghe is the eldest child of Anitha and Somnath Chorghe, from Ghonshet village near Pune. The eleven-year-old is in class five, loves watching movies, and has found a favourite in Shah Rukh Khan. A year back government doctors visited Abhishek’s school for a health check-up for all the children. They found that Abhishek had an irregular heart beat and referred him to a government hospital in Pune. Somnath took Abhishek to the hospital where an echo was carried out. It showed that there was a narrowing in the aorta, the main blood vessel which carries pure blood in the body. He was given medicines and asked to come after a year. Meanwhile a free screening camp was being organized at Jupiter Hospital, Thane. Somnath came to know of this and took Abhishek to the camp. Here too an echo was carried out and the solution to the problem was explained. A stent had to be put in the aorta so that the narrowing could be opened. Somnath is a famer earning Rs 4000 per month, and he could not afford the cost of the surgery. He is immensely grateful for the support extended via the Aara Project.

Muhammed Marjan

Muhammed Marjan is a six day old baby boy from a remote village in Kozhikode, Kerala. The doctors detected breathlessness in the baby soon after birth. The baby was then referred to MIMS hospital, Kozhikode for further management. An echo was carried out at which revealed a CHD. Doctors advised emergency transport of the baby to Amrita Institute On the same day, the baby was transported to Amrita Institute in a Ventilated Ambulance. On arrival, the baby was shifted to the ICU, where a detailed echo cardiography was done and confirmed the diagnosis. The baby was suffering from Total Anomalous Pulmonary Venous Connection. In this condition the Pulmonary Veins from the lungs terminate at the right atrium, instead of the left atrium. Thus, the oxygen content of the body is low. The baby needed an emergency surgery known as TAPVC repair. The baby’s father, Jafar, is a waiter in a hotel and earns around Rs 4000 per month and while mother Ruhaima is a housewife. The news of unexpected heart disease was devastating for the family, but with support from the Aara Project they were able to provide timely treatment to their baby.

Saveetha

Eight-year-old Saveetha is the fifth child of Sathya and Munusamy from Tiruvallur in Tamil Nadu. During routine school check up she was detected to have a cardiac defect and referred to Miot Hospital in Chennai. An Echo showed that Saveetha had a large PDA (connection between Ascending Aorta and Pulmonary Artery). She required a device closure. Her father is a farm laborer earning Rs 6000 per month and so via the Aara Project we were able to support her surgery and now Saveetha has been discharged in a stable condition.

Devadath

Little Devadath from a village in Malappuram, Kerala, is now six months old. The baby was antenatally diagnosed to have a Congenital Heart Defect (CHD).The baby’s mother noticed a bluish discoloration of lips and peripheries. They went to a local hospital in Malappuram where the pediatrician suspected heart disease and referred the baby boy to a private hospital where prostaglandin infusion was given. An echo showed that he is suffering from a rare congenital heart disease called Double Inlet Right Ventricle. In this condition both the tricuspid and mitral valve open in the left ventricle. The right ventricle is poorly developed. The baby was then discharged on eighth day and staged surgeries were planned. The family consulted Dr Krishna Kumar in January 2018 and confirmed the diagnosis and first stage of surgery - BDGS. In Bidirectional Glenn the Superior Vena Cava is connected the Pulmonary Artery. Through this surgery more impure blood will flow to the lungs for purification and the oxygen content of the body will improve. Prasad who works as an industrial helper and earns Rs 5000 per month, which is no way close to the colossal sum required for treatment. The Aara Project came to the rescue and we were able to financially aid this adorable little child’s surgery.

Ayaan

Rakesh Kumar has a small photo framing shop in Varanasi, and when his first child was born, he was excited at the thought of framing their family portrait to hang in his house, from his very own shop. He had no idea how tough the initial months were going to be for them as a family. When Ayaan was a month old he developed a chest infection and was admitted in a government hospital for his fast heartbeat, as well as poor weight gain. The child was discharged after stabilization and were asked to go to a metro city for follow up. An echo was carried which showed that Ayaan had a complex heart problem; transposition of great vessels along with pulmonary atresia. In this condition the two main blood vessels of the body originate from the wrong chambers of the heart and the pathway to the lungs is not fully developed. A doctor from Varanasi referred them to Miot Hospital in Chennai for further evaluation. The family fortunately was in a position to make the long journey to Chennai. There an echo was carried out once more which confirmed the diagnosis. The child had to undergo the first stage of operation, Bidirectional Glenn where the superior vena cava is attached to the pulmonary artery, there by reducing some pressure in the right chamber of the heart. While some of his friends contributed some money towards the surgery of the child, but it was still not enough to cover the costs. The Aara Project stepped in and we were able to give Ayaan a new lease of life and to make sure that Rakesh’s family portrait stayed intact.

Deekshith

Namrita was ecstatic when her parents came home with her baby brother, and she told all her friends in school just how excited she was being an older sister. Deekshith was her most favored companion and for eight months the family enjoyed blissfully the joy that a new baby brings into the home. It was then that Deekshith began experiencing a cough that seemed innocuous enough, but then became a cause for concern as the parents noticed that he was also not gaining weight, and was reaching milestones later than expected. Thus they decided to take him to the local doctor. The doctor examined the baby and noticed a cyanosis as well murmur, and advised that the baby have an echocardiogram taken. He recommended that the parents take Deekshith to Amrita Institute On 22nd March 2018, the baby was examined by Dr. R Krishna Kumar who came to the diagnosis of Tetrology of Fallot and single large anterior malaligned conoventricular VSD. The baby needed an early surgery and Dr. Krishna Kumar, therefore, admitted the baby in the ward. Girish Kumar, Deekshith’s father is a metal worker and has work only in select months, while his mother is a housewife. The family income came to roughly Rs 3000 per month, with which they had close to no hope of funding the surgery. The sum seemed astronomical. This is where Mr. Arvind Datar generously stepped in and financially supported the case so that their baby could come home once again, and play the games she loves. His support brought the gift of laughter and joy to the family.