Heart
Yash was a little over 3 years when he was diagnosed with a hole in his heart, he had a blocked artery in his heart and the valve required to be replaced through surgery. His father teaches in private school and earns Rs. 3000/- per month with this salary he was just able to make ends meet. The case was referred to us by HCRA in Feb 2007. The cost of surgery at AIIMS was estimated at Rs.70,000 GF gladly contributed this amount for Yash’s surgery.
Mandeep Kaur aged 3 years 5 months was diagnosed with a hole in the heart at PGI Chandigarh the hospital recommended she be taken to Delhi for surgery in March 2007.
Mandeep is one of 3 children born to Rashpal Singh and Pawandeep Kaur. She is their youngest child. Her father is a small time farmer in a village near Jallandhar. They could not even afford the cost of medicines for her treatment let alone the cost of surgery. They had heard about GF and approached the Foundation for help. As GF had an arrangement with Max Devki Devi Heart Institute her case was taken there. The cost of was Rs.1,60,000. GF contributed Rs.63,000 the balance amount was subsidized by the hospital. Within a week of her surgery Mandeep was discharged and fully recovered.
Anuj Rana a 4 year old is the only son of a welder from Uttranchal. The family was unable to deal with their son’s treatment and approached GF in June 2007.
The child had been diagnosed having a cardiac problem. After tests undertaken at Max Devki Devi Heart & Vascular Institute he was advised to undergo a Coronary Angiography surgery. The cost of the surgery was Rs.1,60,000 which was partly subsidized by the hospital. GF contributed Rs. 63.000 towards Anuj’s surgery to help Save a Life.
Shashi is the eldest of 3 children born to Ramesh & Jagrati Sharma and suffered from a cardiac disorder (hole in the heart) The family come from a village called Nangroli (Chiproli) which is 10 kms from Noida, UP. Ramesh her father is a gardener who works on daily wages and earns Rs. 1800 per month. They did not have the financial recourses to deal with the surgery their daughter required.
Shashi who was 12 years old was very fragile, without this operation her health would deteriorate. As per the agreement we have with NHI the operation was undertaken in June 2007 by the hospital and GF contributed Rs.50,000 towards the cost of consumables and medical supplies.
Minhaj Hassan is from Bangladesh. In July 2007 the child required open heart surgery for closure of VSD as per the advice of Dr Krishna Iyer Director Pediatric & Congenital Heart Surgery at the Escorts Hospital. The child also suffered from malnutrition.
The operation was a must if the child’s life was to be saved. The family managed to collect Rs.1,50,000/- prior to coming to India. Other charities had donated Rs.55,000 when they approached GF they were short of Rs.25,000 which was our contribution towards supporting this child.
Amit at the age of 11 years was diagnosed with a hole in the heart, the normal symptoms of such a cardiac condition is breathlessness and loss of energy and stamina. His father Devinder Singh is a tractor driver who brings in an income of approximately Rs. 2500/- per month and is the only earning member of the family. Amit has an elder sister who attends school. Amit’s condition required him to undergo surgery. In March 2008 his case was taken up by National Heart Institute and as per our collaboration with them on cases of underprivileged children GF contributed Rs. 50,000/-, towards the cost of medicines and consumables.
Chandi Ram is a 15 year old boy one of a family of 6 children. His father has passed away and his mother Sushila works as a maid. The other earning member is Chandi’s elder brother who works as a labourer. The two of them bring in an income of Rs. 2500/- per month which barely covers their rent and food costs. In March 2008 Chandi was diagnosed with a hole in the heart and required open heart surgery. The case was recommended by National Heart Institute. GF contributed Rs. 50,000/- which was the cost for the medicines and consumables.
Ramu an 8 year old suffered from a cardiac disorder. His father is daily wage labourer who earns Rs.3000/- per month. Ramu is one of 5 children. In October 2008 the family approached HCRA for financial help as the cost of surgery was Rs.1,50,000. GF contributed Rs.25,000 towards his surgery.
Chandresh Kumar a 5 year old boy is one of 3 siblings. His father Ram Bharat is a daily wage earner and comes from Saharanpur village, Gurgaon and earns Rs.2000/- per month. They are part of an extended family and have a small plot of land they till and make ends meet.
Chandresh their only son suffered from congenital heart disease and required surgery. In Nov 2008 they came to Delhi and were admitted to Batra Hospital. The hospital approached GF for help, their case was indeed genuine and once all criteria were verified GF paid the full amount of Rs.1,50,000 for his surgery. Within 10 days of his surgery he was fully recovered and sent home.
Yash Jaiswal had already undergone one surgery two years back. He needed to undergo a VSD closure. His family hails from Jaipur. Father is a road side fruit vender earning approximately Rs 3000/- p m. Mother is a house wife and they have three children. Mr. Mohan Jaiswal had taken a loan for the first surgery. In Nov 2008 Yash was admitted to Batra Hospital and surgery was successful. GF contributed Rs. 50,000.
Piyush an only child was two years of age. The family is from Gaziabad , UP and father Satish Kumar is a sales man at a cloth shop earning Rs.3000/- a month. Mother Ritu Devi is a house wife. Parents were very stressed as Piyush was their only child. In Dec 2008 Piyush underwent open heart surgery to repair the hole in his heart. GF’s contribution was Rs. 100,000
Nishu, at 14 months of age needed a VSD Closure. Her father Bijender Gupta is the only earning member in the family. He is an Asst. Accountant and earns Rs.5,000/- pm. There are five members in the family including two school going children. HCRA referred the case to GF. Nishu was operated on the 16th of December 2008 and GF contributed Rs. 125,000 for the surgery. Nishu is recovering well and is a happy child.
Devika was found abandoned near Jamia Nagar, New Delhi. The police took the new born to AIIMS. The Child welfare Committee sent her to The Welfare Home for children in Sarita Vihar on 2-09-08 as a two days old child. She had respiratory problem and the Home took her for check up to Holy Family hospital. Devika was diagnosed as having a congenital heart deformity needing immediate surgery. Devika was then taken to Batra Hospital. Dr. Viresh Mahajan of Batra referred the child to GF as the child is from an orphanage and they needed funds for immediate surgery. Rs. 50,000/- was organised by the Home and balance Rs.1,10,000/- was contributed by GF. Surgery was done on 20-12-08
Arbish a 5 year old girl was suffering from Tetralogy of Fallot with severe Systematic Desaturation. Doctors advised she undergo open heart surgery for complete repair of her heart condition. She was having problems of breathlessness due to which she could not play, run or walk fast. Due to her severe condition her fingers and nails often turned blue.
Her father works as a helper in a grocery shop and brought in an income of Rs. 3000/- per month and her mother is a housewife. Arbish is the second child of her parents, she has an elder brother. There are eight members in the family including one school going child. Due to the poor financial condition they were unable to afford the surgery treatment.
In 2008 this case was referred to GF by HCRA an NGO, who were contacted by the family in order to sponsor the treatment. The cost of surgery was Rs. 1,20,000/-. The family collected Rs. 30,000/- and GF contributed the balance amount of Rs. 90,000 for the surgery.
Mohammed Nasir was diagnosed as suffering from congenital heart disease in 2008 and was required to undergo surgery as soon as possible. His father works as a tailor earning Rs 2000/- a month and his mother is a housewife. The cost of surgery which was to be undertaken at AIIMS was Rs.70,000/-. J M Morgan Stanley Foundation on hearing about this case from GF sent a cheques of Rs. 20,000/- The balance amount of Rs.50,000 was borne by GF The surgery was successful and Nasir today is fully recovered.
Sidra was 2 months old when she was found to be suffering from congenital heart disease. In 2008 Sidra was suffering from breathlessness, body turning blue and was not able to take her feed. The doctor’s at Escort’s Heart Institute advised the parents to undertake her surgery as soon as possible.
Her father works as a helper in a metal shop and earns approximately Rs. 3800/- per month while the mother is a housewife. Sidra is the one of two children born to the couple. Due to their poor condition financially they are unable to afford the required surgery. This case was referred by HCRA and GF contributed Rs. 50,000/- towards Sidra’s surgery costs.
Neethu was suffering from congenital heart disease. The doctors at the Metro Hospitals & Heart Institute advised for VSD closure as soon as possible. She was unable to take part in any activities as she had a severe breathing problem due to her condition.Her father works as a helper in a gift shop and earns approximately Rs. 3500/- per month. Her mother housewife could not take up a job as they had 4 children including Neethu
The cost of surgery was estimated at Rs.1,65,000/-. In 2008 GF contribution was Rs. 1,00,000/- for the surgery.
Gaurav (8 year old) is a son of Mr. Ram Avtar Yadav who is a taxi driver and earns Rs. 4000/ per month. Gaurav has a 5 year old younger brother. The family lives in a rented house and were unable to deal with the cost of the surgery. This case was referred to GF in 2008 by NHI and as per the understanding we have with the hospital, GF contributed Rs. 50,000/- towards medicines and consumables required for the surgery.
Ayush Chand’s family comes from Palwal. Father Amir Chand is a sweeper with a co-operative in Faridabad with a monthly income of Rs.3,500/- .Mother is a house wife and they have two children, five year old Kushi and two and a half year old Ayush. Ayush was losing weight and had breathing problems. The family realized the child had to be operated on so they sold some property to contribute Rs 80,000/-. GF contributed the remaining Rs.70,000 and Ayush had the surgery in Jan 2009.
Vishnu was a three year old boy who needed immediate surgery as he was having problem with breathing. He comes from a joint family that lives in Palwal district. They grow vegetables in a small piece of land and their income is approximately Rs. 35,000 annually. The family had saved Rs. 50,000 for Vishnu’s surgery. The doctor’s kindly donated Rs. 10,000 for his surgery in Jan 2009 and GF contributed Rs.100,000. Vishnu’s recovery was fast and he is now leading the life of a normal child.
Vanshika a two months old baby had to undergo Heart surgery as she had a congenital heart defect. Vanshika is the first child of Munish and Parul. Munish is a door to door service assistant for Sudhir Gensets. He earns Rs.4,500/- per month. They live in a joint family setting with in-laws and two brothers who are yet to be married. Munish had gone to AIIMS to seek help but as the case was complicated they were referred to Escorts. In Jan 2009 the child had to undergo a second emergency surgery as there was a leakage in the valve. Due to prolonged Hospital stay they were having financial difficulties. The family had already contributed Rs 200,000/- towards the two surgeries. GF helped out with a contribution of Rs. 40,000.
Insha and her mother stayed with extended family in Srinagar. Insha lost her father in 2007 to cancer. Insha’s uncle Mohomad Amin is a rickshaw driver in Srinagar earning Rs.2,500/- a month. He has to support a family of seven members with this meager salary. Concerned for his nieces life he took a loan of Rs. 20,000 and came to Delhi to seek help from the doctors. Insha had open heart surgery in Feb 2009 and GF contributed Rs. 100,000. The surgery was a success and Insha is doing well.
Manas Mishra a 3 year old boy was diagnosed with a hole in the heart. The family is from Uttar Pradesh where the father Dhudnath a farmer brings in a monthly income of Rs.3,500. He has 5 children of which 2 go to school.
The cost of the surgery at AIIMS was estimated at Rs.55,000. He appealed to the Prime Minister’s Fund for support and received Rs.22,000. GF came forward and gave the balance amount of Rs.35,000/- and the surgery was undertaken in March 2009.
Muskan Sahu,8 year old was having severe breathing problems and was diagnosed to have a hole in the heart. Her father is a daily wage earner and gets Rs.100/- for a days work. He manages to get work for only 25 days in a month which makes his income
Rs. 2,500/- per month. They are residents of Uttaranchal and to get surgery in Delhi was beyond their means.
Dr. Mahajan got in touch with Genesis Foundation and the foundation gave Rs.1,00,000/- for the surgery at Batra Hospital. Muskhan had her surgery in April 2009 and is now back to school.
Deepak 6 years old is one of 3 children of Jagan Singh and Berma Devi. His brother Manish also had to undergo heart surgery for a hole in the heart. Deepak was diagnosed with multiple holes in the heart and needed surgery costing Rs.1,40,000/- at Escorts Heart Hospital. Deepak’s father is a farmer in Dholpur Rajsthan earning Rs.4000/- per month.
The case was referred to Genesis Foundation by HCRA a NGO seeking Rs. 65,000/-.GF contributed the said amount and Deepak was operated in May 2009. He is now doing fine.
Mohammad Mahfooz a 15 year boy whose family hails from a small village in UP. His father, Mansoor Ali is a daily wage earner and on days when he is employed earns as little as Rs.100 /- per day. He manages to earn about Rs.2,500/- pm which does not always takes care of their monthly needs. Mohammad was diagnosed with cardiac ailment at the age of 5yrs, the doctors at the hospital had advised surgery. However due to lack of funds the surgery could not be undertaken by the family.
Over the next 10 years his health deteriorated gradually and he had severe breathing problems if he exerted himself. In spite of his ill health the young boy completed his Xth class studies.
Finally at the age of 15 years the doctors informed his father that surgery was necessary if he was to live a normal life. The estimated cost of the surgery was Rs.1,20,000 which they could not afford. Genesis Foundation has an agreement with National heart Institute, Delhi whereby cases like these are subsidized by the hospital and GF contributes Rs.50,000 for the surgery. The surgery took place in August 2009 and has been a success.
Shubham Mondal 4 years old had been diagnosed with a hole in his heart. His father is a daily wage earner working in other peoples fields and earns Rs.2000/- per month. Cost of surgery Rs.1,60,000/- was way beyond their means .
Dr. Chakrabarti from Batra Hospital managed to raise some funds and approached Genesis Foundation for the balance Rs.60,000/- . The foundation gave the amount and the surgery took place in August 2009. Shubham had a successful surgery.
Rinku a bright 7 year old girl who loved going to school. She had a hole in the heart and needed to undergo an open heart surgery at G.B. Pant hospital,New Delhi. Her father is a laborer and mother works as a maid in homes. Their combined income is Rs.3000/- per month.
Rinku’s case was referred to Genesis foundation by HCRA a NGO. The foundation contributed Rs.50,000/- being the cost of surgery. Rinku has had a successful surgery in October 2009.
Tinku, 4 year old, was suffering from Heart Disease. He needed to undergo VSD closure at AIIMS. Tinku’s father was working at a glass making unit and earns Rs. 3,200/- per month. The cost of surgery was Rs. 55,000/- and the family contributed Rs. 13,000/-. They were falling short of Rs. 42,000/- which was contributed by Genesis Foundation. Tinku had his surgery in October 2009 and is now completely normal.
Dilip Das, a 15 year old boy, suffered from Rheumatic Heart Disease. He needed to undergo double valve replacement. His mother was a cleaner earning Rs. 2,000/- and the father had deserted the family. Dilip was working as a helper in a salon earning Rs. 1,500 per month. The family lived in a slum in Taimur Nagar. The case was referred to us by the National Heart Institute. The cost of surgery, which took place in October 2009, was Rs. 2,00,000/- and GF contribution was Rs. 1,00,000.
Neev Malhotra , 2 years old, needed to undergo heart surgery for hole in the heart. The father was a helper in a shop earning Rs. 3,500/- a month. They managed to collect Rs. 60,000/- and the cost of surgery was Rs. 1,00,000/-. Genesis Foundation contributed Rs. 40,000/- which was the balance amount. The foundation was approached for help by the Doctors at Max, Saket. Neev’s surgery took place in December 2009.
Pappu, 3 years old, was abandoned and in November 2009 he was taken to Palna in Civil Lines by the police. The resident doctor of the children’s home diagnosed him with congenital heart disease and they approached Genesis Foundation for help. The foundation took the child to Max Devki Devi Hospital, Saket for further tests and it was found that Pappu needed immediate surgery. The foundation had an understanding with Max Foundation that they would sponsor the surgery of 2 children and Pappu’s case was taken up. Pappu was operated in December 2009 and has since completely recovered.
Sheenu, 1 year 4 months, was the only child of Sandeep and Vanshika. The father was running a Kirana shop in Rohtak earning Rs. 3,000/- per month. They had been trying for admission at AIIMS but could not get a date. Sheenu had congenital heart disease and needed immediate surgery. They finally got admission in Medanta Medicity and a friend of the foundation guided them to us. Sheenu was operated in December 2009 and the cost of surgery of Rs. 1,40,000/- was provided by Genesis Foundation. Sheenu has since gone home and is doing fine
Cancer
Jatin the son of Sushil Kumar a vegetable seller belonged to a small village called Ladwa in Kurukshetra district of Haryana. Father is the sole earning member. Jatin has a younger sibling. The family was in Delhi since March 2008 where he was diagnosed with Acute Leukemia and monosomy seven. As no Bone marrow match was found in the family Jatin had to undergo Unrelated Blood Cord Transplant. The family spent 3 lakhs on his treatment and needed another 15 Lakhs for Blood Cord Transplant. Jatin went in for his transplant on 28th August 2008. Jatin was discharged from the hospital on 12-Dec-08 and is doing fine.
Remo Chaudary underwent treatment in March 2008. The family came from West Bengal and it was difficult to make ends meet in Delhi. Bagbul Islam the boy’s father is a labourer and tried his best to raise the money. They were unable to raise the money for Remo’s chemotherapy and approached Can Support for help. Can Support forwarded the case to GF. Remo underwent surgery on Sep 08 for removal of malignant tissue from left knee. Remo has also been fitted with steel implant to strengthen the knee. GF reimbursed the steel implant cost of Rs 35,006/- . The balance amount was taken care of by PM Relief Fund.
Kunal a 3 yr old had to undergo tumor removal surgery. His father Manoj is working as a driver earning Rs 3000/- a month. He has a little sister who is 8 mths old. His mother is a house wife. He was referred by Rajiv Gandhi Cancer Institute. Kunal is the first case GF has got from RGCI. In October 2008 GF contributed Rs 20,000/- as part payment, the balance was paid by PM Relief fund.
Ankith suffered from head aches and his growth was also affected. He had undergone surgery for removal of tumour. Needed further surgery for VP shunt as he had hydrocephaly also. Father Sanjay Biswash earns Rs3,100/- a month working as a shopkeeper in an ayurvedic medicine shop. Mother Sadhana is a house wife. 2 children, Ankith being the younger one. They have been in and out of hospital for the last one year. They stay in a rented accommodation. For the first surgery in March 2009, they raised money by taking a loan. They thought after surgery their son would be fine, but due to other complications they needed Rs1,50,000/- more for treatment which included chemotherapy. GF contributed Rs50,000/- towards the trearment. LCRA approached other organisations for help as well.
Bajrangi, a 4 year old boy, was suffering from Acute myeloid leukemia (AML). He underwent treatment at AIIMS with a total treatment cost of Rs. 1,00,000/-. The family was from Bihar, they migrated to Delhi and the father was a daily wage earner. With a family income of Rs. 3,000/- per month, chemotherapy and treatment was beyond their means. CanKids approached Genesis foundation seeking help with this case. The foundation contributed Rs. 50,000/- towards his treatment which took place in December 2009.
Janu Kumari at 13 years old suffered from Aplastic Anemia. She had to undergo Bone Marrow Transplant at AIIMS. The family was from Nepal and had settled in Faridabad for the last 5 years. The father was a helper in a house and earned Rs. 4,000/- per month. The cost of BMT was Rs. 5,00,000/-. CanKids got in touch with Genesis Foundation seeking help. Genesis Foundation contributed Rs. 1,00,000/- towards the cost of the BMT. She received her BMT in December 2009.
Deformities
Ravinder Kaur, 14 years old was suffering from Mandibular Retrusion. At the age of 8 1/2 by accident she fell and her jaws collided. From that day till the surgery she could not speak or eat properly, she had been on liquid/semi liquid diet. Operation was denied because she was too young for the device to be put. At the age of 14 the growth had stopped and doctor advised her for surgery and treatment of Distraction Osteogenesis of Mandible for which multiguide distraction device was needed. The device was very expensive and required to be implanted in her mouth. She belonged to a very poor family. Her father was working in a Gurudwara, and earned Rs. 5000/- per month. Due to very poor financial condition the family was unable to bear the expenses of the treatment. In Nov 2007 HCRA referred the case to GF which contributed with Rs. 60,000/- towards her treatment expenses.
Vrundha Nilesh Thakkar was suffering from chronic liver failure and in Jan 2008 was admitted to the hospital for a liver transplant. The family had to sell their house to generate funds for the surgery and took a loan from the relatives to meet the surgery expenses. Her Grand Father gave her a lobe of his liver. But she needed for the next 6 months, post operation medicines which cost the family another Rs 25,000- p.m. ( USD 625.- ) and thereafter Rs 10,000- for next few months.
Her father, an accountant in a rice mill, made hardly enough money for the family to live on. GF funded Vrundha,s medicines and supported her treatment in Sir Gangaram Hospital.
Smita was from Bihar. Her father Naintara, a farmer cum labourer earned Rs.1,500/- p m. Smita has undergone a cadaveric liver transplant and had to take expensive medicines for over a year to survive. There are 6 members in the family including one school going child. The cost of medicines was way beyond their means.HCRA referred the case to Genesis Foundation and GF contributed Rs.70,000/- in May 2008
Sangeeta, a 5 year old orphan girl was suffering from Arthrogryposis Multiplex Congenita (AMC) with B/L CTEV, B/L (stiff elbow and legs). As a result of this ailment she was unable to assist herself in any way and was totally dependant on help from others.
She underwent corrective surgery of her left and right ankles at St Stephan’s Hospital. A third surgery was planned for later the same year. The Foundation presented her case to the specialists at Sir Ganga Ram Hospital and based on the recommendation given by the doctor surgery of her hands was done in June 2008.
Genesis Foundation presented her with a walker which gave her mobility and helped her to interact with the children in the home she resided in. Her recovery was long drawn but with the help of advanced medicine and Foundation support, Sangeeta got a chance to Live. She will need another surgery and GF will support the same.
Priyanka, 5 yrs old, was abandoned and was taken to home by the police. The child had a traumatic past as she was sexually abused as a Baby (2 1/2 yrs old ).As a result of the abuse she had to undergo Colostomy to repair a vaginal tear. Priyanka also had a squint in her right eye, which required surgery. Priyanka underwent physio therapy to get back her renal control. Doctors were of the opinion that she was too young to undergo surgery and wanted to observe her progress for some more time. In 2008 GF paid for her MRI and consultation for eye. The child has been since adopted and is happy with her new family.
Hari Dayal, a 15 year old boy suffered from Neuromuscular Scoliosis. His father, the only working member in the family, had to support five other family members. He worked as a laborer in a farm, earning about Rs. 3,000 per month. Hari Dayal was very keen to help his father but due to his scoliosis he was unable to do any physical labor. The surgery, which happened in November 2009, gave him a chance to lead a normal life.
Vaishali, a 13 year old girl with scoliosis needed to undergo corrective surgery. The surgery involved inserting steel implants to rectify the defect in the spine. The surgery would allow Vaishali to be able to walk straight. The surgery would also expand her chest and torso giving more space for her internal organs, allowing them to function normally. Earlier her organs were getting crushed due to the scoliosis. Vaishali lost her father few years back, she and her mother now stay with her maternal grandparents. They do not have any income of their own and are dependent on the grandfather’s meager pension of Rs. 4,000/- per month. The cost of surgery at Indian Spinal Injuries center was Rs. 3,00,000/-. Genesis Foundation contributed Rs. 1,00,000/- towards cost of surgery which took place in December 2009.
Thalassemia
Harshita Gidwani 10 years old had to depend on blood transfusions to be able to enjoy life’s simple pleasures. Doctors at CMC Vellore were hopeful that bone marrow transplantation will make life easier for her. Harshita,s sister is a HLA match and served as a donor. Harshita’s father Mahender Gidwani is self employed and earns Rs.3000/- per month out of the business. Income not sufficient to run the household . Cost of transplantation Rs.12, 00,000/- was way beyond their means.
Genesis foundation was approached by Thalassemics India our partner NGO for financial help. Harshita’s family was falling short of Rs.9,00,000/-. Genesis Foundation was able to raise the whole amount when they got a sponsor from Switzerland through the efforts of friends of the foundation. Harshita had her transplant in April 2009 and is now doing fine.
Sameer is 6 years and needed blood transfusion every 20 to22 days for survival. He was being treated at a local government hospital in Bilaspur (home town).The doctors advised that the family should take Sameer to CMC Vellore for Allogenic Bone Marrow Transplant. Sameer was lucky to have found a match in his sister Mahek who is just 21 months old. Sameer’s Father Dilip Keshwani runs a small kirana store earning Rs.5000/- per month. Family was unable to bear the cost of treatment.
An uncomplicated transplant in a 12 Kg child can cost Rs.10,00,000/- while serious complications (infections or graft Vs host disease )after transplant can increase the cost as much as Rs.20,00,000/- mainly because of costs related to prolonged hospitalization, immunosuppressive drugs (ATG/ALG) , antibiotics , transfusions and parenteral nutrition.
Sameer underwent Bone marrow transplant in January 2009.His case was referred to the foundation by Thalassemics India and the foundation contributed Rs.2,00,000/- towards the cost of treatment.
Gaurav 8 years old had to survive on blood transfusion every 15 to 21 days. He also had to take iron chelation injection “Desfral” 5 days a week. Bone marrow transplant was his only hope of leading a normal life. Gaurav found a match in his sibling. Thalassemics India forwarded Gaurav’s case to Genesis Foundation. The family had managed to raise Rs.7.5 lakh by pooling in their savings. Father Santosh Chawla is a manager in a company. However they were still falling short of funds, cost of transplant being Rs.12,00,000/-. Genesis Foundation contributed Rs.2,00,000/- towards Gaurav’s transplant which took place in April 2009. Gaurav is doing fine.
Kushagra Lakhmani, a small boy of 3 and half years, was diagnosed with Thalassemia major when he was just 4 months old and at 9 months began a treatment regimen of regular blood transfusions. Kushagra and his older sister had 100 % bone marrow compatibility . The father, a small time accountant with a meager salary of Rs. 5,000/- per month was also supporting his parents in addition to his wife and 2 children. The first transplant was in May 2008 which unfortunately failed and his Thalassemia came back. Kushagra underwent a second transplant in December 2009. The family approached GF for financial support of an additional Rs. 2 lakhs to see them through the second surgery. Kushagra is doing fine.
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