Heart
Nidhi, a 7 month old baby from Bihar, was brought to Sir Ganga Ram Hospital in July 2005, as she was seriously ill and was diagnosed as suffering from arterial septal defect with patent ductus aerteriosus. Immediate surgical intervention was required for closure of PDA. The parents could loose their child if the operation was not undertaken immediately.
Sir Ganga Ram Hospital through its charitable wing provided free bed, theatre and doctors services. However the consumables for the operation like sutures etc were required to be purchased by the family who could not afford this cost. The hospital approached the Foundation for financial assistance of Rs.20,000 which was immediately given. The operation was a success and Nidhi is today leading a normal life fully recovered.
Aman Vipul is 6 year old suffered from a heart disorder. He is the son of Anil & Manju Vipin who has an elder daughter who is a year older than Aman. The family live in a rented DDA accommodation at Ajmeri Gate, Gali Bankukwali, House No 189. Old Delhi.
The father works as a mazdoor at Susu Bharti School and earns Rs.1800 per month. Aman was ailing and was brought to the hospital where he was diagnosed as having a hole in the heart (small Subaortic ventricular defect with left to right flow) which required surgery. The family knew they were unable to deal with the cost of surgery and approached the hospital for help. NHI undertakes assistance for underprivileged cases like these and subsidizes the cost of surgery. As GF has a tie up with National Heart Institute contribution of Rs.50,000 was given towards the cost of Aman’s surgery in Dec 2006. Post surgery Aman was found to be in good health and had fully recovered.
Ann Maria was born with a Ventricular Septal Defect and urgently required open heart surgery for VSD closure. Her father who is 45 years old is a truck driver. He too suffers from a heart disorder and had been recently hospitalized. Ann Maria’s mother, Theresa 36 years old works as a nurse assistant at a private hospital. Their joint annual income is Rs.72,000 and was not sufficient to allow them to undertake the operation their daughter required.
In Dec 2006 her case was referred to GF by HCRA, her surgery took place at Escort’s Heart Institute. GF extended financial support of Rs.50, 000. Anna Maria was 9 months old when surgery was undertaken. She now enjoys a normal healthy life.
Cancer
Dheeraj Kumar Kashyab a two year old boy, an only child of Sheila and Ramchander, suffered from a cancer of the left eye called Retro Blastoma. The child lost total vision in this eye.
His father Ramchander is a farmer who rents 3 bigga of land from a landlord in U.P. He has to hand over half the produce of the crop he yields, as rent. He can just about make enough to feed his family. When the child was one year old they discovered the gradual deterioration of his left eye. With help from relatives they took the child to a hospital in Nepal. Here they were advised that the problem was serious and needed specialized treatment. In Nov 2004 they were referred to AIIMS.
Genesis Foundation took on this case and supported this underprivileged family medically and financially through their ordeal. The treatment involved an extensive course of chemotherapy. The total cost of treatment was Rs. 5445.
Manisha Singh was suffering from Acute Myeloid Leukemina. Her first session of chemotherapy started in January 2005 and she had to go under six chemotherapy sessions. As her cancer had been detected in the early stages and treatment started immediately, there was a very good chance of survival. But in February 2006 Manisha had a relapse and her only chance to survive was a bone marrow transplant. By this time the family had depleted all finances/resources and was looking desperately for help.
Her father was at that time a 3 wheeler scooter driver and was barley making enough money for the whole family (5 members) to live on. So we got involved a second time to save Manisha’s life. In August 2006 she finally got her lifesaving bone marrow transplant and is now doing very well.
Geeta Chouhan a 12-year-old girl from Nepal was the daughter of Shanti and Gopal who have 4 other children. The father sustains the family by giving tuitions in his hometown. The income he earns can barely support the mouths he has to feed.
She was referred to Genesis Foundation by CanSupport. Her left jaw line was swollen and her stomach area bloated, she had a sickly pallor, no appetite and was in a lot of pain. She was admitted to the Emergency Ward at AIIMS on January 22, 2005. She was found to be suffering from Leukemia, phenomena and other infections.
Due to the highly developed stage of Leukemia she had developed lumps in her abdomen and chin and mouth lacerations. Max Foundation Delhi agreed to support her with certain medicines, Novartis also agreed to supply Glivec FOC which help deal with the cancer.
However the cost of the supplementary medicines and antibiotics was more than the free drugs supplied by Max Foundation & Novartis. GF agreed to support her treatment. Cost to the Foundation was over Rs.30,000.
On March 22, 2005 Geeta was released from AIIMS after being hospitalized for over 2 months. Her infections and Phenomena were under control and she returned to Nepal. We received a message from her relative Mr. Tiwari that she passed away on 28, April 2005 in Nepal.
Chandan Kumar a 13 year old boy suffered from Acute Lymphoblastic Leukemia. He was losing weight and in May 2005 was referred to AIIMS. After several tests he was diagnosed as an ALL patient and his treatment was started. The father approached the Sujjan Sigh Park resident’s association for help who in turn approached CanSupport and Rotary Club for support.
Chandan is the son of Ranjan Kumar a security guard working at Sujjan Singh Park earning Rs.3000 per month. The family has 2 sons, the younger being Shiv Raj who is 3 years old. They live in a rented accommodation for which they pay Rs.800 per month.
In August 2005 Chandan underwent 4/5 sessions of chemotherapy and a bone marrow test was undertaken. The total cost for his treatment was Rs. 250,000 and Genesis Foundation supported his treatment by contributing Rs. 33,419.Today he is on his way to recovery.
Keshav Rajan developed joint pains and his hands and feet had swellings in July 2005. The child was taken to a hospital in Darbanga district, Bihar. The swellings then spread to his neck and stomach and as they suspected the child had cancer they were askedto take the child to Delhi for treatment at AIIMS.
The father immediately brought Keshav to Delhi and it was diagnosed that Keshav was in the early stages of cancer and was suffering from Acute Lymphocyte Leukemia (ALL). Since October 2005 Ajit Kumar has been in Delhi dealing with his son’s treatment.
Ajit is a laborer and earns app Rs.1200 per month if he is able to get a steady job. The parents also have another girl child Sakshi who is 3 ½ years old. After having exhausted his funds he sought the help of CanKids who seeing his financial condition and the requirements Keshav has agreed to support him for the next 4/5 sessions of medicines.
CanSupport has managed as a special case to get him a free bed in the AIIMS dharamshala for another month. GF has contributed Rs. 5702 towards medical bills.
Karishma Singh was born with her left eye closed. The family not being educated hoped that the deformity she suffered was temporary. She is youngest of three children born to Mahinder and Pushpa who are from UP. When there was no change in her appearance they sought medical assistance. At 2 years of age Karishma was diagnosed to have cancer -Retro Blastoma.
Her father Mahinder is a mason by profession and does not have a permanent job. If employed he earns app Rs.1500 per month. There is no fixed income that he can rely on for his family’s day-to-day needs. In a year he works for app 8-9 months.
In October 2005 Karishma underwent several sessions of chemotherapy supported by the Genesis Foundation. Once the cancer was cured the doctors recommended she be operated on and fitted with an artificial eye to restore her appearance.
Deformities
Anamika, at seven months was found abandoned in a garbage dump soon after birth. Her loud screams led the police patrol to find her. Her left cheek, ear and parts of her forehead, upper and lower arm had been ravaged extensively. The baby was admitted to AIIMS where she fought for her life and survived. An NGO volunteered to take the baby girl under their care and contacted the Genesis Foundation to support the treatment. The road to recovery was long and Anamika needed to undergo a series of cosmetic reconstructive surgeries over the next 10/12 years of her life. She underwent her first surgery at the Apollo Hospital under Dr. Shahin Nooreyezdin, who performed two surgeries in a span of 10 days and free of cost. Due to Mickey Bharucha’s(Genesis Foundation) contacts with the hospital she approached Dr Pratap C Reddy for help. The Foundation incurred a cost of app Rs.14, 000 for the first surgery. Anamika underwent three to four surgeries each year. Genesis Foundation supported her all through.
Swapna, a 5 year old child, abandoned by her mother soon after birth in Bangalore, was diagnosed with Arthrogryposis Multiple Congenitals along with severe Scoliosis, deformed vertebral column where the head is not aligned with the pelvis, Mesocardia (heart in midline position) & CTEV (BIL). As the child had severe Scoliosis, she had a problem walking, was later brought to a home in Delhi. The Home approached the Foundation in 2003 and since then Swati’s treatment is being taken care of by the foundation. GF sought the help of doctors at the Indian Spinal Injuries Centre (ISIC).She required an operation that would undertake to support her spinal cord internally and externally. Imported implants were inserted.The cost of Rs.2.00 lacs was borne by Genesis Foundation and today Swati is doing well and studying in a school. She is due for another surgery in 2010.
Kishore is 12 years old, he suffers from polio and Scoliosis and walked with crutches. He too was supported by GF and was treated at ISIC in July 2006. His case required immediate attention as he was advanced in years and required to be operated on as soon as possible.
He required a rod to be inserted along his spine with clips as his spine was gradually deteriorating. This operation allowed him to walk without too much of a stoop. He was very keen to go to school and pursue his studies. This operation helped him tremendously.
Anila, was taken under GF care in 2006 when the home for abandoned kids where she stayed asked for help for her treatment. The child had many complications the most severe being Scoliosis (twisted spine).First surgery was at Indian Spinal Injuries Centre (ISIC)in 2006. The second surgery was at Gangaram in Aug 2009. She required many more surgeries and today is happy child and goes to a regular school. GF has contributed Rs. 2,00,000/- and will continue to support her for future treatment.
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