Govind a 13 year old was suffering from Congenital Heart Disease. He needed to undergo open heart surgery at Max Heart Hospital, Saket. Govind’s father works as a salesman in a cloth shop and is earning Rs.4,700/- per month. Govind is one of 5 children. The family is from Madhya Pradesh & Govind’s condition was identified in a screening camp by a local NGO. The cost of  his surgery was Rs.140,000/-. Genesis Foundation supported his surgery by contributing Rs.85,ooo/-. Govind is now doing fine.

Kushagra before the Bone Marrow Transplant

Kushagra Today

Kushagra Lakhmani, a small boy of 3 and half years, was diagnosed with Thalassemia major when he was just 4 months old and at 9 months began a treatment regimen of regular blood transfusions. Kushagra  and his older sister  had 100 % bone marrow compatibility . His father, a small time accountant with a meager salary of Rs. 5,000/- per month was also supporting his parents in addition to his wife and 2 children.  The first transplant was in May 2008 which unfortunately failed and his Thalassemia came back.  Kushagra underwent a second transplant in December 2009.  The family approached GF for financial support of an additional Rs. 2 lakh to see them through the second surgery.  Kushagra is now doing fine. 

In his feedback to Genesis Foundation, Kushagra’s father said, ‘Kushagra is now very fine. We were in CMC Vellore, for a routine check up and Dr Vikram was fully satisfied with Kushagra’s health and has allowed him to go to school. Me and my whole family say thanks very much.’

Heart

Pushpanjali, an 11 year old girl was diagnosed with a hole in the heart and needed to undergo open heart surgery.  She loves being in school and lives in a joint family of 7.  Her father was the only wage earning member working as a cook in an office transit home at Kanpur earning Rs. 2,500/- per month.   The estimated cost of surgery was Rs. 1,30,000/- and was undertaken at Escort’s Heart Institute.  The family managed to collect Rs. 30,000/-. The family was from Orissa and every time they came to Delhi for Pushpanjali’s checkup they incurred costs they could not afford.  Genesis Foundation contributed Rs. 1,00,000/- towards the cost of surgery which took place in February  2010.  Pushpanjali is now doing fine.

Inshika a 4-and-half-year-old girl was referred to us by a friend who knows about the Foundation. Inshika’s father is a driver earning Rs.3,500/- per month. Her mother suffers from Type-2 Diabetes. Inshika is the only child of the couple.With this meager salary daily needs are hardly met and cost of surgery of Rs.1,10,000/- was way beyond their means. Genesis Foundation provided the financial support for her. A one time surgery would ensure Inshika leads a normal healthy life. She had a successful open heart surgery at Max Heart Institute, Saket in Feb 2010 is back home.

Aditya a 6-year-old boy had congenital heart disease needing open heart surgery. The child was taken to AIIM’S in Sep ‘09 and was advised surgery. The family is from Varanasi and the father works in a shop and earns Rs.3,750/- per month. The family has moved from Bihar to Varanasi and is still to settle down fully. Genesis Foundation has contributed Rs.55,000/- towards the cost of surgery . He had a successful surgery in Feb 2010.

Durgesh Jha a 2 and half years old boy, needed open heart surgery (VSD closure) at the earliest. Cost of surgery was Rs.1,30,000/- at Escorts Heart Institute. Durgesh’s father is a helper in a dairy shop and earns Rs.3,000/- per month. Durgesh is the only child, born after many years of marriage. The familywas heart broken and was able to collect only Rs.30,000/- for the surgery. This case was referred to Genesis Foundation, and an amount of Rs.1, 00,000/- was contributed towards his surgery. Durgesh underwent surgey in Feb 2010 and is now on the way to recovery.

One and half years old Prince needed heart surgery at Max Hospital, Saket. The cost of surgery is Rs. 1,50,000/-. His father works under a sub contractor at IIT, Delhi and earns Rs.4,500/- per month. They live in rented accommodation, with the rent being Rs.1000/- a month. The cost of surgery was beyond their means. The father was running from pillar to post trying to get funds, when he came to know about Genesis Foundation from some one in the hospital. They then got in touchwith Genesis Foundation, with all of Prince’s medical papers. The parents were happy and were finally able to smile when they found out that Genesis Foundation hadtaken up the case. He had surgery in Feb 2010.

Lucky, 7 years old, suffered from TOF, a congenital heart defect and needed open heart surgery.  The cost of surgery was Rs. 1,65,000/- at Medanta Medicity and the family managed to collect Rs. 80,000/-. Lucky’s father, a helper in a garment factory in Bhilwada, Rajasthan was earning Rs. 2,500/- a month.  They sold their house and took help from friends to get funds for the surgery.  Lucky is their only child and the parents had been trying to get treatment for their son for the past 4 years.  The doctors of the hospital got in touch with Genesis Foundation as the child needed immediate surgery.  The balance of Rs. 85,000/- was contributed by the foundation.  Lucky was operated on 18th March 2010. He is responding well to post op medicines and is on his way to recovery.

Md.Tanbir, 4 years of age was suffering from Congenital Heart Disease. The child needed a B D Glen surgery Cost of surgery was Rs.45,000/- at AIIMS. Tanbir’s father is a labourer working in a brick factory earning Rs.3000/- per month. Tanbir is one of four children. Tanbir’s mother is a house wife. The family deposited 4 units of blood at AIIMS for the surgery. Genesis Foundation contributed the cost of surgery and surgery was done in end April 2010

Yash Koirala, a delicate 2 and a half year old was suffering from VSD with Aortic valve prolapse. He needed urgent cardiac surgery, the cost of surgery was Rs.1,50,000 at Max Devika Devi Heart & Vascular Institute. Yash’s father is a jeep driver in Uttarnchal and earned Rs.4000 per month. The father lost his job as he has been taking Yash from one hospital to the other for the last couple of months. Yash is their only child. The doctors at Max Hospital got in touch with us and Genesis Foundation contributed Rs.1,00,000 towards his surgery. He underwent a successful surgery, end April 2010 .

Master Pulkit was suffering from Haemangioma with increased blood flow. He is a 5 years old and  needed to undergo  vascular surgery to correct the condition at the earliest. Pulkit’s father has a small shop selling gutka & toffees earning about Rs. 4,500 per month. They are residents of Faridabad. Cost of surgery at Sarvodya Hospital, Faridabad is Rs.60,000. Genesis Foundation has been approached by an NGO partner for help. With the timely support by Genesis Foundation Pulkit had his surgery in May 2010 and has recovered fully.

Anjali a 10 year old, needed heart surgery to correct a hole in her heart ( PDA). Anjali was a student of class 4. Her father is a gardner earning Rs.4,500 per month. They are residents of Ludhiana. Cost of surgery at Max Devika Devi Heart & Vascular Institute is Rs. 75,000. Genesis Foundation took up the case which was referred to us by doctors at Max hospital. Anjali underwent surgery in May 2010 and is doing fine.

Rohan, a 2 year old, had to undergo open heart surgery at AIIMS for a hole in the heart. His father is a labourer in Rohtak village and earns Rs.100/- a day . Their monthly income is Rs. 2,500/- only. Rohan’s elder brother died of heart disease.They live in a joint family and Rohan’s father Hukum Singh is the sole bread winner. Cost of surgery of Rs.55,000/- is being contributed by Genesis Foundation.The family deposited blood for surgery and had surgery on 4 May 2010

Falak a 2-year-old girl,is the youngest of 6 children. She had congenital heart disease. She also suffers from Down’s syndrome. The child was taken to AIIM’S and needed open Heart Surgery. The cost of surgery was Rs.55,000/-. Falak’s father is a tailor who earns Rs.3000/- per month. Having a large family and taking care of a special child in his meager income was very difficult. A friend of the foundation came to know of this family in need and got in touch with us. Genesis Foundation contributed the money in AIIMS and she had surgery end of May 2010.

Farah  a 14 year old girl was suffering from congenital heart disease. She needed to undergo angiograph and heart surgery to correct the defect. Farah’s father is a tempo driver, aged 55 yrs earning Rs.3000 per month. They are a family of 6 children. Farah’s surgery got delayed due to lack of funds. Cost of surgery was Rs.1,55,000 which was way beyond their means. They are residents of Agra and doctors of a Delhi hospital found her to be needing surgery at a screening camp held at Agra. The family came to Delhi with the help of an NGO from Agra. They were falling short of Rs.75,000.  The doctors approached Genesis Foundation for help with the balance. Farah had surgery in June 2010.

Pooja 14 years of age had to undergo Valve repair. She was a student of class 9. The family comes from Agra. Her father is an auto driver earning Rs.2000 per month. Pooja was found to be needing surgery at a screening camp at Agra by doctors of a Delhi hospital. The doctors approached Genesis Foundation for help. The cost of surgery was Rs.1,50,000. The family was able to raise Rs.75,000 and the balance was paid by Genesis Foundation. Pooja had a successful surgery at Max Devika Devi Heart & Vascular Institute, in July 2010 and is doing well.

Mohit Sharma a 9 years old had multiple holes in the heart. The family is from Agra. Their father works as office help and earns a monthly salary of Rs. 2,700/-. The cost of surgery at Max Devika Devi Heart & Vascular Institute was Rs. 1,40,000/- .Genesis Foundation contributed 1,00,000  towards his surgery. Mohit underwent surgery in July 2010 and is doing fine.

Jayant 8 months old suffered from a heart disorder. His father is a welder and earns as meager Rs. 1,200/- per month and cannot afford the surgery. Jayant is their only child. The cost of VSD closure is Rs. 1,50,000/- at Max Devika Devi Heart & Vascular Institute. Genesis Foundation contributed 1,00,000  towards his surgery. Jayant underwent successful surgery in July 2010.

Namandeep 8 months old required open heart surgery (VSD Closure). He underwent Pulmonary artery banding in February 2010. He needed a second surgery as soon as possible. His father is a tailor earning Rs. 5,000/- per month. They borrowed money for the first surgery. The cost of the second surgery at Fortis Escorts Heart Institute was Rs. 2,00,000/-.The family collected  Rs. 75,000/- and the balance of`Rs. 1,25,000/- was contributed by Genesis Foundation. Namandeep underwent surgery in August 2010 and is recovering well.

Mannat a 2 month baby needed immediate heart surgery as she was suffering from a congenital heart disease. Her oxygen level was very low and surgery had to be undertaken immediately. Mannat’s father has a small provision store in Patna and earns Rs.  4000/- per month. Doctors at Medanta Medicity had sought the Foundation’s help as the family was falling short of Rs.1,00,000/- for her surgery. The baby underwent surgery on 2nd of Aug 2010 is recovering well.

Chotu Rathod a 3 year old was suffering from a hole in the heart (TOF) since birth. The boy also has a cleft lip because of which his speech is not clear. Chotu requires two surgeries, one to correct his heart condition and the second to rectify his cleft. The family is from Agra, Chotu’s father does embroidery work from his house and earns about Rs. 3000/- per month. The cost of Chotu’s open heart surgery at Max Devika Devi Heart & Vascular Institute, was Rs.1,40,000/-.In August 2010 Genesis Foundation contributed Rs.1,00,000 towards his surgery.

Aman 5 years old had a hole in the heart (TAG-VSD) and needed to undergo his second open heart surgery. Aman’s father is a taxi driver and earns Rs.4000/- per month. He had his first surgery(S/P BT Shunt), when he was less than a year old. Surgery cost was Rs. 1,20,000/- at Indraprastha Apollo Hospitals. He had surgery in  September 2010. Genesis Foundation contributed Rs.70,000.

At 1 year & 7 months, Naitik Gaur needed to undergo open heart surgery without delay, to correct Congenital heart defect. Naithik had already undergone two non- invasive procedures (Balloon dilatation ) in June & August 2010 . But as there was no improvement in his condition heart surgery has become unavoidable. Naitk’s father  Ram works as a driver in Gwalior and earns Rs.3000/- per month. Cost of surgery at Medanta medicity was Rs.1,10,000/- and the family has managed to collect Rs.30,000/- only. Genesis foundation was approached by the Doctors at Medicity and the balance of Rs.80,000/- has been given by the Foundation. Naitik underwent surgery on 28-10-2010 and is on his way to recovery.

Lucky was 15 years old and was diagnosed as having a hole in the heart. As she was advanced in age the surgery was required to be done as soon as possible at National Heart Institute. Lucky’s father is a farmer earning Rs.3000/- per month. Cost of her surgery was Rs.1,90,000/-. The Family accumulated some funds but required a further amount of Rs.80,000/- which was contributed by the foundation and she had surgery in October 2010

Manas Mishra 6 yrs old was suffering from Congenital Heart Disease and needed surgery, ASD with conduits, cost of which was Rs.1,25,000 at AIIMS. The child’s father is a labourer earning Rs.100 per day and earns only Rs.1,500 a month. They are from Kanpur and had come to AIIMS for treatment. The cost of surgery was beyond their means.  The family had approached Genesis Foundation for help and we contributed the whole amount.The  surgery was postponed due to infection in the chest and finally done in November. Unfortunately due to post surgical complications he did not survive.

Adity Narayan, 7 years old suffered from a Congenital Heart Disease. She had severe breathing problems and got fatigued very fast. Adity needed open heart surgery at Escorts Heart & Research Institute at the earliest. Adity’s father Mukesh Kumar works in the screen printing unit of a garment factory and earns Rs.3,500/- per month. The cost of surgery was Rs.1,55,000/-. The family has managed to collect some funds for the surgery but were  falling short of Rs.80,000/- which was contributed by Genesis Foundation. She had surgery in November 2010.

Shivani a 9 years from Agra, was suffering from a cardiac disorder and needed to undergo open heart surgery at Max Devki Devi Heart & Research Institute. The estimated cost of surgery was Rs.1,50,000/-. Shivani’s father is a daily wage labourer who earns Rs. 120/- per day and manages to get work for only 22/25 days in a month. Genesis Foundation contributed Rs.1,00,000/- towards her surgery which was done in November 2010

Cancer

Shabnam, a 14-year-old girl from a small village near Sohna, Haryana was suffering from Acute Myeloid Leukemia (a bad type of blood cancer).  She underwent treatment in Pediatric Hemato- Oncology Unit at Sir Ganga Ram Hospital for 4 months.  For a complete cure Shabnam needed to undergo Bone Marrow Transplant from her sister.  Her BMT, which was the only hope for her, took place in February 2010.  The estimated cost was approximately Rs 10-12 lakhs, which the family could not afford.  Shabnam, a student in class ix, is very good in academics.  Her father works at a welding workshop earning Rs. 4,000/month.

Ajay ( Monu) a 5 years old was suffering from Retinoblastoma of the left eye ( cancer) and his treatment involved 6 cycles of Chemotherapy, followed by surgery for removal of eye, followed by 20 sessions of radiotherapy. Post surgery in May 2010, he was undergoing radiotherapy at Dr. Shroff’s Charity Eye Hospital. Ajay’s father is a labourer and earns Rs.1,500 per month. They are from Saharanpur, UP. He has 3 other siblings. The cost of treatment is Rs. 1,80,400. Genesis F oundation contributed Rs.85,400 towards his treatment. Unfortunately Ajay passed away in the month of July.

Mohd. Iqbal Rashid  a 15 years old, studying in class IX . He is good in studies and a foot ball player as well. It was found that Iqbal was suffering from Non Hodgkins Lymphoma . He is undergoing Chemotherapy at Max , Saket and Genesis Foundation is supporting by funding the Chemotherapy. He has to undergo 6 cycles of Chemotherapy of which 2 cycles have been completed as on Oct 2010. Estimated cost of each Chemo cycle was Rs.45,000/- . Iqbal’s father works as a secretary in a small firm and earns Rs.5000/- per month. Doctors at Max approached us seeking support for Iqbal and the Foundation has contributed Rs. 25,000 for his treatment.

Deformities

Mary Rose a 14 month girl from an orphanage, suffered from obstructive hydrocephalus with lipomeningomyelocele. She was completely paraplegic with bowel bladder incontinence.She was admitted to Sir Gangaram Hospital and part of her surgery costs were supported by the charity wing of the hospital.Mary Rose was admitted for palliative surgery but on further investigation, it was discovered that she was also suffering from VonWilbrend disease and thrombocytopenia. She was operated on June 8, 2010 and underwent corrective coagulation profile. She had a prolonged stay at the hospital, of more than 12 days and finally returned to the orphanage on June 20, 2010.Genesis Foundation contributed Rs.55,000 towards this successful surgery. 

Amir required to undergo Tethering of Cord as he had a tail bone protruding 7 inches outside the body. Amir’s father is a tailor on daily wages in Uttar Pradesh and earns Rs.4,200 per month. They are a family with 3 children and Amir is the eldest child. Due to lack of funds the family was unable to get surgery done at birth. As Amir was 5 years old andthe chances of a rupture were very high and it could be fatal.Amir’s case was referred to Genesis Foundation by Indian Spinal Injuries Center on May 6, 2010. The child was taken by GF to Sir Ganga Ram Hospital for tests and his surgery was undertaken on May 18, 2010. The operation was a success. The cost of surgery was Rs.1,00,000/-. Amir was lucky to have got a free bed and his surgery cost was borne by Sir Ganga Ram’s charitable trust.

Mohit a 10 year old boy from a village near Meerut, had a fall from a height which resulted in injury to his spine. He underwent emergency surgery in Dec 2010. He was under rehabilitation as he is paralyzed waist down and will be a wheel chair user for life. Mohit’s father is a labourer earning Rs.1,800/- per month , and he has 4 children to support. Cost of surgery was beyond their means.Genesis Foundation was approached by the hospital and the cost of Implants of Rs.80,000/- was provided by the Foundation.

Thalassemia

Vansh Babbar, a 6 year old was diagnosed to have thalasaemia major. His sister Ankita can serve as a bone marrow donor . Estimated cost of BMT at CMC Vellore is Rs.12,00,000/- .Vansh’s father Dinesh Babbar is working as an operative in the die casting unit at Yamaha Motors. They were unable to bear the total cost of treatment and thalassemics India approached the foundation seeking help. Genesis foundation contributed 1,00,000 towardys the surgery and his Bone Marrow Transplant ( BMT) has been scheduled in July 2010.

Mahima a student of class 8 in MRV model school,has 2 younger brothers and one of them was the donor of the Bone Marrow. Her father is a street vendor earning approximately Rs.4000 per month. This case has been referred to GF by Thalassemics India. Mahima started her BMT procedure in end May 2010 . She was hospitalised for 6 weeks and the surgery was completed in June 2010. The cost of surgery was Rs.10,00,000 the family was able to raise Rs.5,00,000 and GF supported with the same

Harsh, 12 years old and was diagnosed Thalassemia Major at a very young age. He had been on regular blood transfusions and painful iron chelation, which was not only very traumatic for him and his family but has resulted in a huge financial burden on the family. His father is a small time shopkeeper and is unable to support his son’s treatment. His youngest brother is normal and luckily a perfect match for the Bone Marrow transplant Harsh required. The cost of the surgery was 12 lakhs, and Genesis Foundation contributed Rs.1,00,000 towards his treatment.

In March 2010, 4 year old Tanbir was referred to us by AIIMS as he was suffeing from a Congenital heart disease. We are happy to share that Tanvir has undergone B D Glen surgery on April 26th and is on his way to recovery.Our Genesis Foundation team met with Tanvir’s grandfather at the hospital,who was happy and relieved that the surgey was successful and thanked Genesis Foundation for their help and support. Post operation Tanbir looked happy but was missing his mother and was eagerly looking forward to going home. Genesis Foundation contributed Rs. 45,000/ towards the surgery.

 7 year old Lucky suffered from TOF -a congenital heart defect, needing open heart surgery. The cost of surgery was Rs.1,65,000/- at Medanta Medicity and the family managed to collect Rs.80,000/- only. Lucky’s father works as a help in a garment factory in Bhilwada, Rajasthan earning Rs.2,500/- a month.They sold their house and took help from friends to get funds for the surgery. Lucky is their only child and the parents had been trying to get treatment for their son since the last 4 years.
The doctors of the hospital got in touch with Genesis Foundation as the child needed immediate surgery. The balance of Rs.85,000/- was contributed by the foundation.
Lucky was operated on 18th March 2010. He is responding well to post op medicines and is on his way to recovery.

Harshita Gidwani after surgery

Harshita Gidwani was 10 years old when she was referred to us, by Thalassemics India for support. Harshita had to depend on blood transfusions to be able to enjoy life’s simple pleasures.

Harshita a grade 6 student at Shri Sanatan Dharam Education Center, Kanpur,  is passionate about  dance and enjoys an outdoor life. An intelligent girl, she is always amongst the top 5 in her class. Her hobbies are drawing, dancing and playing badminton.

Her father Mahendra Gidwani who had a fruit shop was only able to earn Rs. 3000 a month.He had to take several loans in order to deal with the regular blood transfusions that were required for her treatment . Her mother  Neha is a home maker who in addition to Harshita, has two other children to care for.

The doctors at CMC Vellore recommended immediate  Bone Marrow Transplant (BMT). Luckily,  her sister was a HLA match and served as a donor. The estimated cost of BMT  was Rs.12, 00,000 which the family could not afford. They however managed to collect Rs.3,00,000 . Genesis  Foundation with the support of a donor from Switzerland – Impag AG  helped save the life of this child by donating Rs.9,00,000 for her treatment. Her surgery took place  in May 2009, she is today recovered and enjoys a normal life.

We thank Impag AG, Zurich for their support in helping Save a Life

Heart

Yash was a little over 3 years when he was diagnosed with a hole in his heart, he had a blocked artery in his heart and the valve required to be replaced through surgery. His father teaches in private school and earns Rs. 3000/- per month with this salary he was just able to make ends meet. The case was referred to us by HCRA in Feb 2007. The cost of surgery at AIIMS was estimated at Rs.70,000 GF gladly contributed this amount for Yash’s surgery.

Mandeep Kaur aged 3 years 5 months was diagnosed with a hole in the heart at PGI Chandigarh the hospital recommended she be taken to Delhi for surgery in March 2007.

Mandeep is one of 3 children born to Rashpal Singh and Pawandeep Kaur. She is their youngest child. Her father is a small time farmer in a village near Jallandhar. They could not even afford the cost of medicines for her treatment let alone the cost of surgery. They had heard about GF and approached the Foundation for help. As GF had an arrangement with Max Devki Devi Heart Institute her case was taken there. The cost of was Rs.1,60,000. GF contributed Rs.63,000 the balance amount was subsidized by the hospital. Within a week of her surgery Mandeep was discharged and fully recovered.

Anuj Rana a 4 year old is the only son of a welder from Uttranchal. The family was unable to deal with their son’s treatment and approached GF in June 2007.

The child had been diagnosed having a cardiac problem. After tests undertaken at Max Devki Devi Heart & Vascular Institute he was advised to undergo a Coronary Angiography surgery. The cost of the surgery was Rs.1,60,000 which was partly subsidized by the hospital. GF contributed Rs. 63.000 towards Anuj’s surgery to help Save a Life.

Shashi is the eldest of 3 children born to Ramesh & Jagrati Sharma and suffered from a cardiac disorder (hole in the heart) The family come from a village called Nangroli (Chiproli) which is 10 kms from Noida, UP. Ramesh her father is a gardener who works on daily wages and earns Rs. 1800 per month. They did not have the financial recourses to deal with the surgery their daughter required.

Shashi who was 12 years old was very fragile, without this operation her health would deteriorate. As per the agreement we have with NHI the operation was undertaken in June 2007 by the hospital and GF contributed Rs.50,000 towards the cost of consumables and medical supplies.

Minhaj Hassan is from Bangladesh. In July 2007 the child required open heart surgery for closure of VSD as per the advice of Dr Krishna Iyer Director Pediatric & Congenital Heart Surgery at the Escorts Hospital. The child also suffered from malnutrition.

The operation was a must if the child’s life was to be saved. The family managed to collect Rs.1,50,000/- prior to coming to India. Other charities had donated Rs.55,000 when they approached GF they were short of Rs.25,000 which was our contribution towards supporting this child.

Amit at the age of 11 years was diagnosed with a hole in the heart, the normal symptoms of such a cardiac condition is breathlessness and loss of energy and stamina. His father Devinder Singh is a tractor driver who brings in an income of approximately Rs. 2500/- per month and is the only earning member of the family. Amit has an elder sister who attends school. Amit’s condition required him to undergo surgery. In March 2008 his case was taken up by National Heart Institute and as per our collaboration with them on cases of underprivileged children GF contributed Rs. 50,000/-, towards the cost of medicines and consumables.

Chandi Ram is a 15 year old boy one of a family of 6 children. His father has passed away and his mother Sushila works as a maid. The other earning member is Chandi’s elder brother who works as a labourer. The two of them bring in an income of Rs. 2500/- per month which barely covers their rent and food costs. In March 2008 Chandi was diagnosed with a hole in the heart and required open heart surgery. The case was recommended by National Heart Institute. GF contributed Rs. 50,000/- which was the cost for the medicines and consumables.

Ramu an 8 year old suffered from a cardiac disorder. His father is daily wage labourer who earns Rs.3000/- per month. Ramu is one of 5 children. In October 2008 the family approached HCRA for financial help as the cost of surgery was Rs.1,50,000. GF contributed Rs.25,000 towards his surgery.

Chandresh Kumar a 5 year old boy is one of 3 siblings. His father Ram Bharat is a daily wage earner and comes from Saharanpur village, Gurgaon and earns Rs.2000/- per month. They are part of an extended family and have a small plot of land they till and make ends meet.

Chandresh their only son suffered from congenital heart disease and required surgery. In Nov 2008 they came to Delhi and were admitted to Batra Hospital. The hospital approached GF for help, their case was indeed genuine and once all criteria were verified GF paid the full amount of Rs.1,50,000 for his surgery. Within 10 days of his surgery he was fully recovered and sent home.

Yash Jaiswal had already undergone one surgery two years back. He needed to undergo a VSD closure. His family hails from Jaipur. Father is a road side fruit vender earning approximately Rs 3000/- p m. Mother is a house wife and they have three children. Mr. Mohan Jaiswal had taken a loan for the first surgery. In Nov 2008 Yash was admitted to Batra Hospital and surgery was successful. GF contributed Rs. 50,000.

Piyush an only child was two years of age. The family is from Gaziabad , UP and father Satish Kumar is a sales man at a cloth shop earning Rs.3000/- a month. Mother Ritu Devi is a house wife. Parents were very stressed as Piyush was their only child. In Dec 2008 Piyush underwent open heart surgery to repair the hole in his heart. GF’s contribution was Rs. 100,000

Nishu, at 14 months of age needed a VSD Closure. Her father Bijender Gupta is the only earning member in the family. He is an Asst. Accountant and earns Rs.5,000/- pm. There are five members in the family including two school going children. HCRA referred the case to GF. Nishu was operated on the 16th of December 2008 and GF contributed Rs. 125,000 for the surgery. Nishu is recovering well and is a happy child.

Devika was found abandoned near Jamia Nagar, New Delhi. The police took the new born to AIIMS. The Child welfare Committee sent her to The Welfare Home for children in Sarita Vihar on 2-09-08 as a two days old child. She had respiratory problem and the Home took her for check up to Holy Family hospital. Devika was diagnosed as having a congenital heart deformity needing immediate surgery. Devika was then taken to Batra Hospital. Dr. Viresh Mahajan of Batra referred the child to GF as the child is from an orphanage and they needed funds for immediate surgery. Rs. 50,000/- was organised by the Home and balance Rs.1,10,000/- was contributed by GF. Surgery was done on 20-12-08

Arbish a 5 year old girl was suffering from Tetralogy of Fallot with severe Systematic Desaturation. Doctors advised she undergo open heart surgery for complete repair of her heart condition. She was having problems of breathlessness due to which she could not play, run or walk fast. Due to her severe condition her fingers and nails often turned blue.

Her father works as a helper in a grocery shop and brought in an income of Rs. 3000/- per month and her mother is a housewife. Arbish is the second child of her parents, she has an elder brother. There are eight members in the family including one school going child. Due to the poor financial condition they were unable to afford the surgery treatment.

In 2008 this case was referred to GF by HCRA an NGO, who were contacted by the family in order to sponsor the treatment. The cost of surgery was Rs. 1,20,000/-. The family collected Rs. 30,000/- and GF contributed the balance amount of Rs. 90,000 for the surgery.

Mohammed Nasir was diagnosed as suffering from congenital heart disease in 2008 and was required to undergo surgery as soon as possible. His father works as a tailor earning Rs 2000/- a month and his mother is a housewife. The cost of surgery which was to be undertaken at AIIMS was Rs.70,000/-. J M Morgan Stanley Foundation on hearing about this case from GF sent a cheques of Rs. 20,000/- The balance amount of Rs.50,000 was borne by GF The surgery was successful and Nasir today is fully recovered.

Sidra was 2 months old when she was found to be suffering from congenital heart disease. In 2008 Sidra was suffering from breathlessness, body turning blue and was not able to take her feed. The doctor’s at Escort’s Heart Institute advised the parents to undertake her surgery as soon as possible.

Her father works as a helper in a metal shop and earns approximately Rs. 3800/- per month while the mother is a housewife. Sidra is the one of two children born to the couple. Due to their poor condition financially they are unable to afford the required surgery. This case was referred by HCRA and GF contributed Rs. 50,000/- towards Sidra’s surgery costs.

Neethu was suffering from congenital heart disease. The doctors at the Metro Hospitals & Heart Institute advised for VSD closure as soon as possible. She was unable to take part in any activities as she had a severe breathing problem due to her condition.Her father works as a helper in a gift shop and earns approximately Rs. 3500/- per month. Her mother housewife could not take up a job as they had 4 children including Neethu

The cost of surgery was estimated at Rs.1,65,000/-. In 2008 GF contribution was Rs. 1,00,000/- for the surgery.

Gaurav (8 year old) is a son of Mr. Ram Avtar Yadav who is a taxi driver and earns Rs. 4000/ per month. Gaurav has a 5 year old younger brother. The family lives in a rented house and were unable to deal with the cost of the surgery. This case was referred to GF in 2008 by NHI and as per the understanding we have with the hospital, GF contributed Rs. 50,000/- towards medicines and consumables required for the surgery.

Ayush Chand’s family comes from Palwal. Father Amir Chand is a sweeper with a co-operative in Faridabad with a monthly income of Rs.3,500/- .Mother is a house wife and they have two children, five year old Kushi and two and a half year old Ayush. Ayush was losing weight and had breathing problems. The family realized the child had to be operated on so they sold some property to contribute Rs 80,000/-. GF contributed the remaining Rs.70,000 and Ayush had the surgery in Jan 2009.

Vishnu was a three year old boy who needed immediate surgery as he was having problem with breathing. He comes from a joint family that lives in Palwal district. They grow vegetables in a small piece of land and their income is approximately Rs. 35,000 annually. The family had saved Rs. 50,000 for Vishnu’s surgery. The doctor’s kindly donated Rs. 10,000 for his surgery in Jan 2009 and GF contributed Rs.100,000. Vishnu’s recovery was fast and he is now leading the life of a normal child.

Vanshika a two months old baby had to undergo Heart surgery as she had a congenital heart defect. Vanshika is the first child of Munish and Parul. Munish is a door to door service assistant for Sudhir Gensets. He earns Rs.4,500/- per month. They live in a joint family setting with in-laws and two brothers who are yet to be married. Munish had gone to AIIMS to seek help but as the case was complicated they were referred to Escorts. In Jan 2009 the child had to undergo a second emergency surgery as there was a leakage in the valve. Due to prolonged Hospital stay they were having financial difficulties. The family had already contributed Rs 200,000/- towards the two surgeries. GF helped out with a contribution of Rs. 40,000.

Insha and her mother stayed with extended family in Srinagar. Insha lost her father in 2007 to cancer. Insha’s uncle Mohomad Amin is a rickshaw driver in Srinagar earning Rs.2,500/- a month. He has to support a family of seven members with this meager salary. Concerned for his nieces life he took a loan of Rs. 20,000 and came to Delhi to seek help from the doctors. Insha had open heart surgery in Feb 2009 and GF contributed Rs. 100,000. The surgery was a success and Insha is doing well.

Manas Mishra a 3 year old boy was diagnosed with a hole in the heart. The family is from Uttar Pradesh where the father Dhudnath a farmer brings in a monthly income of Rs.3,500. He has 5 children of which 2 go to school.

The cost of the surgery at AIIMS was estimated at Rs.55,000. He appealed to the Prime Minister’s Fund for support and received Rs.22,000. GF came forward and gave the balance amount of Rs.35,000/- and the surgery was undertaken in March 2009.

Muskan Sahu,8 year old was having severe breathing problems and was diagnosed to have a hole in the heart. Her father is a daily wage earner and gets Rs.100/- for a days work. He manages to get work for only 25 days in a month which makes his income
Rs. 2,500/- per month. They are residents of Uttaranchal and to get surgery in Delhi was beyond their means.
Dr. Mahajan got in touch with Genesis Foundation and the foundation gave Rs.1,00,000/- for the surgery at Batra Hospital. Muskhan had her surgery in April 2009 and is now back to school.

Deepak 6 years old is one of 3 children of Jagan Singh and Berma Devi. His brother Manish also had to undergo heart surgery for a hole in the heart. Deepak was diagnosed with multiple holes in the heart and needed surgery costing Rs.1,40,000/- at Escorts Heart Hospital. Deepak’s father is a farmer in Dholpur Rajsthan earning Rs.4000/- per month.
The case was referred to Genesis Foundation by HCRA a NGO seeking Rs. 65,000/-.GF contributed the said amount and Deepak was operated in May 2009. He is now doing fine.

Mohammad Mahfooz a 15 year boy whose family hails from a small village in UP. His father, Mansoor Ali is a daily wage earner and on days when he is employed earns as little as Rs.100 /- per day. He manages to earn about Rs.2,500/- pm which does not always takes care of their monthly needs. Mohammad was diagnosed with cardiac ailment at the age of 5yrs, the doctors at the hospital had advised surgery. However due to lack of funds the surgery could not be undertaken by the family.
Over the next 10 years his health deteriorated gradually and he had severe breathing problems if he exerted himself. In spite of his ill health the young boy completed his Xth class studies.
Finally at the age of 15 years the doctors informed his father that surgery was necessary if he was to live a normal life. The estimated cost of the surgery was Rs.1,20,000 which they could not afford. Genesis Foundation has an agreement with National heart Institute, Delhi whereby cases like these are subsidized by the hospital and GF contributes Rs.50,000 for the surgery. The surgery took place in August 2009 and has been a success.

Shubham Mondal 4 years old had been diagnosed with a hole in his heart. His father is a daily wage earner working in other peoples fields and earns Rs.2000/- per month. Cost of surgery Rs.1,60,000/- was way beyond their means .
Dr. Chakrabarti from Batra Hospital managed to raise some funds and approached Genesis Foundation for the balance Rs.60,000/- . The foundation gave the amount and the surgery took place in August 2009. Shubham had a successful surgery.

Rinku a bright 7 year old girl who loved going to school. She had a hole in the heart and needed to undergo an open heart surgery at G.B. Pant hospital,New Delhi. Her father is a laborer and mother works as a maid in homes. Their combined income is Rs.3000/- per month.
Rinku’s case was referred to Genesis foundation by HCRA a NGO. The foundation contributed Rs.50,000/- being the cost of surgery. Rinku has had a successful surgery in October 2009.

Tinku, 4 year old, was suffering from Heart Disease.  He needed to undergo VSD closure at AIIMS.  Tinku’s father was working at a glass making unit and earns Rs. 3,200/- per month.  The cost of surgery was Rs. 55,000/- and the family contributed Rs. 13,000/-.  They were falling short of Rs. 42,000/- which was contributed by Genesis Foundation.  Tinku had his surgery in October 2009 and is now completely normal.

Dilip Das, a 15 year old boy, suffered from Rheumatic Heart Disease.   He needed to undergo double valve replacement.   His mother was a cleaner earning Rs. 2,000/- and the father had deserted the family.   Dilip was working as a helper in a salon earning Rs. 1,500 per month.  The family lived in a slum in Taimur Nagar.  The case was referred to us by the National Heart Institute.  The cost of surgery, which took place in October 2009, was Rs. 2,00,000/- and GF contribution was Rs. 1,00,000.

Neev Malhotra , 2 years old, needed to undergo heart surgery for hole in the heart.  The father was a helper in a shop earning Rs. 3,500/- a month.  They managed to collect Rs. 60,000/- and the cost of surgery was Rs. 1,00,000/-.  Genesis Foundation contributed Rs. 40,000/- which was the balance amount.   The foundation was approached for help by the Doctors at Max, Saket.  Neev’s surgery took place in December 2009.

Pappu, 3 years old, was abandoned and in November 2009 he was taken to Palna in Civil Lines by the police.  The resident doctor of the children’s home diagnosed him with congenital heart disease and they approached Genesis Foundation for help. The foundation took the child to Max Devki Devi Hospital, Saket  for further tests and it was found that Pappu needed immediate surgery.  The foundation had an understanding with Max Foundation that they would sponsor the surgery of 2 children and Pappu’s case was taken up.  Pappu was operated in December 2009 and has since completely recovered.

Sheenu, 1 year 4 months, was the only child of Sandeep and Vanshika.  The father was running a Kirana shop in Rohtak earning Rs. 3,000/- per month.  They had been trying for admission at AIIMS but could not get a date.  Sheenu had congenital heart disease and needed immediate surgery.  They finally got admission in Medanta Medicity and a friend of the foundation guided them to us.   Sheenu was operated in December 2009 and the cost of surgery of Rs. 1,40,000/- was provided by Genesis Foundation.  Sheenu has since gone home and is doing fine

Cancer

Jatin the son of Sushil Kumar a vegetable seller belonged to a small village called Ladwa in Kurukshetra district of Haryana. Father is the sole earning member. Jatin has a younger sibling. The family was in Delhi since March 2008 where he was diagnosed with Acute Leukemia and monosomy seven. As no Bone marrow match was found in the family Jatin had to undergo Unrelated Blood Cord Transplant. The family spent 3 lakhs on his treatment and needed another 15 Lakhs for Blood Cord Transplant. Jatin went in for his transplant on 28th August 2008. Jatin was discharged from the hospital on 12-Dec-08 and is doing fine.

Remo Chaudary underwent treatment in March 2008. The family came from West Bengal and it was difficult to make ends meet in Delhi. Bagbul Islam the boy’s father is a labourer and tried his best to raise the money. They were unable to raise the money for Remo’s chemotherapy and approached Can Support for help. Can Support forwarded the case to GF. Remo underwent surgery on Sep 08 for removal of malignant tissue from left knee. Remo has also been fitted with steel implant to strengthen the knee. GF reimbursed the steel implant cost of Rs 35,006/- . The balance amount was taken care of by PM Relief Fund.

Kunal a 3 yr old had to undergo tumor removal surgery. His father Manoj is working as a driver earning Rs 3000/- a month. He has a little sister who is 8 mths old. His mother is a house wife. He was referred by Rajiv Gandhi Cancer Institute. Kunal is the first case GF has got from RGCI. In October 2008 GF contributed Rs 20,000/- as part payment, the balance was paid by PM Relief fund.

Ankith suffered from head aches and his growth was also affected. He had undergone surgery for removal of tumour. Needed further surgery for VP shunt as he had hydrocephaly also. Father Sanjay Biswash earns Rs3,100/- a month working as a shopkeeper in an ayurvedic medicine shop. Mother Sadhana is a house wife. 2 children, Ankith being the younger one. They have been in and out of hospital for the last one year. They stay in a rented accommodation. For the first surgery in March 2009, they raised money by taking a loan. They thought after surgery their son would be fine, but due to other complications they needed Rs1,50,000/- more for treatment which included chemotherapy. GF contributed Rs50,000/- towards the trearment. LCRA approached other organisations for help as well.

Bajrangi, a 4 year old boy, was suffering from Acute myeloid leukemia (AML).  He underwent treatment at AIIMS with a total treatment cost of Rs. 1,00,000/-. The family was from Bihar, they migrated to Delhi and the father was a daily wage earner.  With a family income of Rs. 3,000/- per month, chemotherapy and treatment was beyond their means.  CanKids approached Genesis foundation seeking help with this case.  The foundation contributed Rs. 50,000/- towards his treatment which took place in December 2009.

Janu Kumari at 13 years old suffered from Aplastic Anemia.  She had to undergo Bone Marrow Transplant at AIIMS.  The family was from Nepal and had settled in Faridabad for the last 5 years.  The father was a helper in a house and earned Rs. 4,000/- per month.  The cost of BMT was Rs. 5,00,000/-.  CanKids got in touch with Genesis Foundation seeking help.  Genesis Foundation contributed Rs. 1,00,000/- towards the cost of the BMT.  She received her BMT in December 2009.

Deformities

Ravinder Kaur, 14 years old was suffering from Mandibular Retrusion. At the age of 8 1/2 by accident she fell and her jaws collided. From that day till the surgery she could not speak or eat properly, she had been on liquid/semi liquid diet. Operation was denied because she was too young for the device to be put. At the age of 14 the growth had stopped and doctor advised her for surgery and treatment of Distraction Osteogenesis of Mandible for which multiguide distraction device was needed. The device was very expensive and required to be implanted in her mouth. She belonged to a very poor family. Her father was working in a Gurudwara, and earned Rs. 5000/- per month. Due to very poor financial condition the family was unable to bear the expenses of the treatment. In Nov 2007 HCRA referred the case to GF which contributed with Rs. 60,000/- towards her treatment expenses.

Vrundha Nilesh Thakkar was suffering from chronic liver failure and in Jan 2008 was admitted to the hospital for a liver transplant. The family had to sell their house to generate funds for the surgery and took a loan from the relatives to meet the surgery expenses. Her Grand Father gave her a lobe of his liver. But she needed for the next 6 months, post operation medicines which cost the family another Rs 25,000- p.m. ( USD 625.- ) and thereafter Rs 10,000- for next few months.
Her father, an accountant in a rice mill, made hardly enough money for the family to live on. GF funded Vrundha,s medicines and supported her treatment in Sir Gangaram Hospital.

Smita was from Bihar. Her father Naintara, a farmer cum labourer earned Rs.1,500/- p m. Smita has undergone a cadaveric liver transplant and had to take expensive medicines for over a year to survive. There are 6 members in the family including one school going child. The cost of medicines was way beyond their means.HCRA referred the case to Genesis Foundation and GF contributed Rs.70,000/- in May 2008

Sangeeta, a 5 year old orphan girl was suffering from Arthrogryposis Multiplex Congenita (AMC) with B/L CTEV, B/L (stiff elbow and legs). As a result of this ailment she was unable to assist herself in any way and was totally dependant on help from others.
She underwent corrective surgery of her left and right ankles at St Stephan’s Hospital. A third surgery was planned for later the same year. The Foundation presented her case to the specialists at Sir Ganga Ram Hospital and based on the recommendation given by the doctor surgery of her hands was done in June 2008.

Genesis Foundation presented her with a walker which gave her mobility and helped her to interact with the children in the home she resided in. Her recovery was long drawn but with the help of advanced medicine and Foundation support, Sangeeta got a chance to Live. She will need another surgery and GF will support the same.

Priyanka, 5 yrs old, was abandoned and was taken to home by the police. The child had a traumatic past as she was sexually abused as a Baby (2 1/2 yrs old ).As a result of the abuse she had to undergo Colostomy to repair a vaginal tear. Priyanka also had a squint in her right eye, which required surgery. Priyanka underwent physio therapy to get back her renal control. Doctors were of the opinion that she was too young to undergo surgery and wanted to observe her progress for some more time. In 2008 GF paid for her MRI and consultation for eye. The child has been since adopted and is happy with her new family.

Hari Dayal, a 15 year old boy suffered from Neuromuscular Scoliosis.  His father, the only working member in the family, had to support five other family members.  He worked as a laborer in a farm, earning about Rs. 3,000 per month.   Hari Dayal was very keen to help his father but due to his scoliosis he was unable to do any physical labor.  The surgery, which happened in November 2009, gave him a chance to lead a normal life.

Vaishali, a 13 year old girl with scoliosis needed to undergo corrective surgery.   The surgery involved inserting steel implants to rectify the defect in the spine.  The surgery would allow Vaishali to be able to walk straight.  The surgery would also expand her chest and torso giving more space for her internal organs, allowing them to function normally. Earlier her organs were getting crushed due to the scoliosis. Vaishali lost her father few years back, she and her mother now stay with her maternal grandparents.  They do not have any income of their own and are dependent on the grandfather’s meager pension of Rs.  4,000/- per month.   The cost of surgery at Indian Spinal Injuries center was Rs. 3,00,000/-.  Genesis Foundation contributed Rs. 1,00,000/- towards cost of surgery which took place in December 2009. 

Thalassemia

Harshita Gidwani 10 years old had to depend on blood transfusions to be able to enjoy life’s simple pleasures. Doctors at CMC Vellore were hopeful that bone marrow transplantation will make life easier for her. Harshita,s sister is a HLA match and served as a donor. Harshita’s father Mahender Gidwani is self employed and earns Rs.3000/- per month out of the business. Income not sufficient to run the household . Cost of transplantation Rs.12, 00,000/- was way beyond their means.
Genesis foundation was approached by Thalassemics India our partner NGO for financial help. Harshita’s family was falling short of Rs.9,00,000/-. Genesis Foundation was able to raise the whole amount when they got a sponsor from Switzerland through the efforts of friends of the foundation. Harshita had her transplant in April 2009 and is now doing fine.

Sameer is 6 years and needed blood transfusion every 20 to22 days for survival. He was being treated at a local government hospital in Bilaspur (home town).The doctors advised that the family should take Sameer to CMC Vellore for Allogenic Bone Marrow Transplant. Sameer was lucky to have found a match in his sister Mahek who is just 21 months old. Sameer’s Father Dilip Keshwani runs a small kirana store earning Rs.5000/- per month. Family was unable to bear the cost of treatment.
An uncomplicated transplant in a 12 Kg child can cost Rs.10,00,000/- while serious complications (infections or graft Vs host disease )after transplant can increase the cost as much as Rs.20,00,000/- mainly because of costs related to prolonged hospitalization, immunosuppressive drugs (ATG/ALG) , antibiotics , transfusions and parenteral nutrition.
Sameer underwent Bone marrow transplant in January 2009.His case was referred to the foundation by Thalassemics India and the foundation contributed Rs.2,00,000/- towards the cost of treatment.

Gaurav 8 years old had to survive on blood transfusion every 15 to 21 days. He also had to take iron chelation injection “Desfral” 5 days a week. Bone marrow transplant was his only hope of leading a normal life. Gaurav found a match in his sibling. Thalassemics India forwarded Gaurav’s case to Genesis Foundation. The family had managed to raise Rs.7.5 lakh by pooling in their savings. Father Santosh Chawla is a manager in a company. However they were still falling short of funds, cost of transplant being Rs.12,00,000/-. Genesis Foundation contributed Rs.2,00,000/- towards Gaurav’s transplant which took place in April 2009. Gaurav is doing fine.

Kushagra Lakhmani, a small boy of 3 and half years, was diagnosed with Thalassemia major when he was just 4 months old and at 9 months began a treatment regimen of regular blood transfusions. Kushagra  and his  older sister  had 100 % bone marrow compatibility . The father, a small time accountant with a meager salary of Rs. 5,000/- per month was also supporting his parents in addition to his wife and 2 children.  The first transplant was in May 2008 which unfortunately failed and his Thalassemia came back.  Kushagra underwent a second transplant in December 2009.  The family approached GF for financial support of an additional Rs. 2 lakhs to see them through the second surgery.  Kushagra is doing fine.

Heart

Nidhi, a 7 month old baby from Bihar, was brought to Sir Ganga Ram Hospital in July 2005, as she was seriously ill and was diagnosed as suffering from arterial septal defect with patent ductus aerteriosus. Immediate surgical intervention was required for closure of PDA. The parents could loose their child if the operation was not undertaken immediately.

Sir Ganga Ram Hospital through its charitable wing provided free bed, theatre and doctors services. However the consumables for the operation like sutures etc were required to be purchased by the family who could not afford this cost. The hospital approached the Foundation for financial assistance of Rs.20,000 which was immediately given. The operation was a success and Nidhi is today leading a normal life fully recovered.

Aman Vipul is 6 year old suffered from a heart disorder. He is the son of Anil & Manju Vipin who has an elder daughter who is a year older than Aman. The family live in a rented DDA accommodation at Ajmeri Gate, Gali Bankukwali, House No 189. Old Delhi.

The father works as a mazdoor at Susu Bharti School and earns Rs.1800 per month. Aman was ailing and was brought to the hospital where he was diagnosed as having a hole in the heart (small Subaortic ventricular defect with left to right flow) which required surgery. The family knew they were unable to deal with the cost of surgery and approached the hospital for help. NHI undertakes assistance for underprivileged cases like these and subsidizes the cost of surgery. As GF has a tie up with National Heart Institute contribution of Rs.50,000 was given towards the cost of Aman’s surgery in Dec 2006. Post surgery Aman was found to be in good health and had fully recovered.

Ann Maria was born with a Ventricular Septal Defect and urgently required open heart surgery for VSD closure. Her father who is 45 years old is a truck driver. He too suffers from a heart disorder and had been recently hospitalized. Ann Maria’s mother, Theresa 36 years old works as a nurse assistant at a private hospital. Their joint annual income is Rs.72,000 and was not sufficient to allow them to undertake the operation their daughter required.

In Dec 2006 her case was referred to GF by HCRA, her surgery took place at Escort’s Heart Institute. GF extended financial support of Rs.50, 000. Anna Maria was 9 months old when surgery was undertaken. She now enjoys a normal healthy life.

Cancer

Dheeraj Kumar Kashyab a two year old boy, an only child of Sheila and Ramchander, suffered from a cancer of the left eye called Retro Blastoma. The child lost total vision in this eye.

His father Ramchander is a farmer who rents 3 bigga of land from a landlord in U.P. He has to hand over half the produce of the crop he yields, as rent. He can just about make enough to feed his family. When the child was one year old they discovered the gradual deterioration of his left eye. With help from relatives they took the child to a hospital in Nepal. Here they were advised that the problem was serious and needed specialized treatment. In Nov 2004 they were referred to AIIMS.

Genesis Foundation took on this case and supported this underprivileged family medically and financially through their ordeal. The treatment involved an extensive course of chemotherapy. The total cost of treatment was Rs. 5445.

Manisha Singh was suffering from Acute Myeloid Leukemina. Her first session of chemotherapy started in January 2005 and she had to go under six chemotherapy sessions. As her cancer had been detected in the early stages and treatment started immediately, there was a very good chance of survival. But in February 2006 Manisha had a relapse and her only chance to survive was a bone marrow transplant. By this time the family had depleted all finances/resources and was looking desperately for help.

Her father was at that time a 3 wheeler scooter driver and was barley making enough money for the whole family (5 members) to live on. So we got involved a second time to save Manisha’s life. In August 2006 she finally got her lifesaving bone marrow transplant and is now doing very well.

Geeta Chouhan a 12-year-old girl from Nepal was the daughter of Shanti and Gopal who have 4 other children. The father sustains the family by giving tuitions in his hometown. The income he earns can barely support the mouths he has to feed.

She was referred to Genesis Foundation by CanSupport. Her left jaw line was swollen and her stomach area bloated, she had a sickly pallor, no appetite and was in a lot of pain. She was admitted to the Emergency Ward at AIIMS on January 22, 2005. She was found to be suffering from Leukemia, phenomena and other infections.

Due to the highly developed stage of Leukemia she had developed lumps in her abdomen and chin and mouth lacerations. Max Foundation Delhi agreed to support her with certain medicines, Novartis also agreed to supply Glivec FOC which help deal with the cancer.

However the cost of the supplementary medicines and antibiotics was more than the free drugs supplied by Max Foundation & Novartis. GF agreed to support her treatment. Cost to the Foundation was over Rs.30,000.

On March 22, 2005 Geeta was released from AIIMS after being hospitalized for over 2 months. Her infections and Phenomena were under control and she returned to Nepal. We received a message from her relative Mr. Tiwari that she passed away on 28, April 2005 in Nepal.

Chandan Kumar a 13 year old boy suffered from Acute Lymphoblastic Leukemia. He was losing weight and in May 2005 was referred to AIIMS. After several tests he was diagnosed as an ALL patient and his treatment was started. The father approached the Sujjan Sigh Park resident’s association for help who in turn approached CanSupport and Rotary Club for support.

Chandan is the son of Ranjan Kumar a security guard working at Sujjan Singh Park earning Rs.3000 per month. The family has 2 sons, the younger being Shiv Raj who is 3 years old. They live in a rented accommodation for which they pay Rs.800 per month.

In August 2005 Chandan underwent 4/5 sessions of chemotherapy and a bone marrow test was undertaken. The total cost for his treatment was Rs. 250,000 and Genesis Foundation supported his treatment by contributing Rs. 33,419.Today he is on his way to recovery.

Keshav Rajan developed joint pains and his hands and feet had swellings in July 2005. The child was taken to a hospital in Darbanga district, Bihar. The swellings then spread to his neck and stomach and as they suspected the child had cancer they were askedto take the child to Delhi for treatment at AIIMS.

The father immediately brought Keshav to Delhi and it was diagnosed that Keshav was in the early stages of cancer and was suffering from Acute Lymphocyte Leukemia (ALL). Since October 2005 Ajit Kumar has been in Delhi dealing with his son’s treatment.

Ajit is a laborer and earns app Rs.1200 per month if he is able to get a steady job. The parents also have another girl child Sakshi who is 3 ½ years old. After having exhausted his funds he sought the help of CanKids who seeing his financial condition and the requirements Keshav has agreed to support him for the next 4/5 sessions of medicines.

CanSupport has managed as a special case to get him a free bed in the AIIMS dharamshala for another month. GF has contributed Rs. 5702 towards medical bills.

Karishma Singh was born with her left eye closed. The family not being educated hoped that the deformity she suffered was temporary. She is youngest of three children born to Mahinder and Pushpa who are from UP. When there was no change in her appearance they sought medical assistance. At 2 years of age Karishma was diagnosed to have cancer -Retro Blastoma.

Her father Mahinder is a mason by profession and does not have a permanent job. If employed he earns app Rs.1500 per month. There is no fixed income that he can rely on for his family’s day-to-day needs. In a year he works for app 8-9 months.

In October 2005 Karishma underwent several sessions of chemotherapy supported by the Genesis Foundation. Once the cancer was cured the doctors recommended she be operated on and fitted with an artificial eye to restore her appearance.

Deformities

Anamika, at seven months was found abandoned in a garbage dump soon after birth. Her loud screams led the police patrol to find her. Her left cheek, ear and parts of her forehead, upper and lower arm had been ravaged extensively. The baby was admitted to AIIMS where she fought for her life and survived. An NGO volunteered to take the baby girl under their care and contacted the Genesis Foundation to support the treatment. The road to recovery was long and Anamika needed to undergo a series of cosmetic reconstructive surgeries over the next 10/12 years of her life. She underwent her first surgery at the Apollo Hospital under Dr. Shahin Nooreyezdin, who performed two surgeries in a span of 10 days and free of cost. Due to Mickey Bharucha’s(Genesis Foundation) contacts with the hospital she approached Dr Pratap C Reddy for help. The Foundation incurred a cost of app Rs.14, 000 for the first surgery. Anamika underwent three to four surgeries each year. Genesis Foundation supported her all through.

Swapna, a 5 year old child, abandoned by her mother soon after birth in Bangalore, was diagnosed with Arthrogryposis Multiple Congenitals along with severe Scoliosis, deformed vertebral column where the head is not aligned with the pelvis, Mesocardia (heart in midline position) & CTEV (BIL). As the child had severe Scoliosis, she had a problem walking, was later brought to a home in Delhi. The Home approached the Foundation in 2003 and since then Swati’s treatment is being taken care of by the foundation. GF sought the help of doctors at the Indian Spinal Injuries Centre (ISIC).She required an operation that would undertake to support her spinal cord internally and externally. Imported implants were inserted.The cost of Rs.2.00 lacs was borne by Genesis Foundation and today Swati is doing well and studying in a school. She is due for another surgery in 2010.

Kishore is 12 years old, he suffers from polio and Scoliosis and walked with crutches. He too was supported by GF and was treated at ISIC in July 2006. His case required immediate attention as he was advanced in years and required to be operated on as soon as possible.

He required a rod to be inserted along his spine with clips as his spine was gradually deteriorating. This operation allowed him to walk without too much of a stoop. He was very keen to go to school and pursue his studies. This operation helped him tremendously.

Anila, was taken under GF care in 2006 when the home for abandoned kids where she stayed asked for help for her treatment. The child had many complications the most severe being Scoliosis (twisted spine).First surgery was at Indian Spinal Injuries Centre (ISIC)in 2006. The second surgery was at Gangaram in Aug 2009. She required many more surgeries and today is happy child and goes to a regular school. GF has contributed Rs. 2,00,000/-  and will continue to support her for future treatment.

Kushagra Lakhmani is a small boy of 3 and half years. He was diagnosed with Thalassemia major when he was just 4 months old. The family tried hard to treat him with alternate remedies, however at the age of 9 months at CMC Vellore his diagnosis was confirmed and treatment regimen of regular blood transfusions bega, explained to the family.

Kushagra has an older sister and the hospital did the HLA testing to see if there was bone marrow compatibility between the siblings. It turned out to be 100% compatable. The father, a small time accountant with a meagre salary of Rs. 5000- per month, has also to support his parents in addition to his wife and 2 children. The first transplant in May 2008,  unfortunately failed and his thalassemia condition worsened. Kushagra has now undergone  a second transplant in Dec’09. The family approached Genesis Foundation for financial support of additional Rs.200,000- (approx USD3750) to see them through the second surgery. Kushagra is doing fine now.

Here’s  what Kushagra has to say, “Hi I am Kushagra, I am four years old. I love playing with colors, playing games on  computer. I like grapes, apple. I love puzzles, playing cricket. I love to watch cartoon movies. My favourite channel is POGO. I don’t like to go to hospital.”

Genesis Foundation Goodwill Ambassador Parvathy and Pappu

On November 11, 2009, 3-year-old Pappu entered PALNA. He was quiet, listless and hardly smiled. Dr. Veronica Shah, Palna’s medical consultant, found him having breathing difficulties and the tests revealed and it was found that he needed urgent heart surgery.

The team went into action – a heart surgeon was identified, and wonder of wonders, Genesis Foundation offered to bear the cost of the surgery and hospitalisation. Dr Dagar and his team operated on Pappu on December 22, 2009 and Pappu came home on December 28, 2009. He is doing well as the pictures below will show. His smile tells it all!

On January 16, 2010, the Goodwill Ambassador for Genesis Foundation, Ms Parvathy OmanaKuttan (Miss India 2008 and first runner up of Miss World 2008) visited Pappu at Palna and spent a happy hour with the children. God Bless You All.