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CAF KIDS STORIES

Golu

Golu, four years from Mathura, is suffering from a heart disorder called Patent Ductus Arteriosus, which has resulted to a hole in between the descending Aorta and Pulmonary Artery. It can only be closed with a device in a Cath Lab, in this case at Apollo Hospital, Delhi. His mother Machhala Devi, is a labourer and earns Rs 3000 per month with which she has to support four children and her husband who is physically challenged and cannot work. It is a struggle for the family, every single day. Taking on the financial burden of a surgery has weighed down Machhala Devi who is now so grateful that we at Genesis Foundation are able to take this financial strain of her and support Golu’s surgery.

Asim Antule

Asim Antule, two months old is the second child to Abdulla and Parveen Antule. The family reside in Rathnagiri district, in Maharashtra. A few days after Asim was born he showed signs of difficulty in breathing, as well as feeding and eventually developed pneumonia. Both Abdulla and Parveen consulted a local doctor who prescribed some medication and strongly advised they take their newborn son to Mumbai for further investigation. After this appointment, both parents returned home and were unsure on what their next steps should be. They decided to get in touch with some relatives who stayed in Thane, and then planned out how they could bring Asim to Jupiter Hospital, in Thane for further consultation. It wasn’t long until they travelled to Mumbai for the first time and upon their arrial all initial tests like an echo were conducted. This revealed that Asim was suffering from a heart disorder called Severe Pulmonary Stenosis, which is narrowing of the pulmonary valve. Both parents were counseled together, and told that their son needs to undergo a procedure called a Balloon Pulmonary Valvotomy, where the valve is opened with the help of a balloon. What he was suffering from is a critical illness and has no cure besides surgery. Abdulla was at a loss, as he didn’t know how he was going to afford surgery. He is a welder who earns roughly Rs 4000 per month, so bringing together the funds required were only just a dream. The doctors contacted us at Genesis Foundation for help, and we were dedicated in financially supporting this case through CAFA and giving the parents relief from the stress of worrying about the finances – every child has a chance to live. We believe the lack of funds is no reason for any child to die, so we were honoured to save another beating heart. The procedure was performed successfully and Asim has been discharged in a stable condition.

Devansha

Devansha, ten years old from Tamil Nadu is suffering from a heart disorder – namely, Ventricular Septal Defect and requires surgical closure. Her mother Arul is a cook, and the only earning member in the family as her husband passed away. She earns Rs 2000 per month, with which it’s nearly impossible to make day-to-day ends meet, let alone the financial burden of medical costs. She has reached out to us for financial support, to save Devansha’s life.

Paridhi Chauhan

Paridhi Chauhan, the daughter of Aarti and Divan Chauhan is a four year old girl from Khurja, Uttar Pradesh. Her father is a farmer and only earns Rs. 3,000/- a month. She suffered from a condition in which there was a hole present between the Aorta and Pulmonary Artery. This hole was closed by a PDA device closure and this operation took place in the cath lab of Apollo Hospital in New Delhi. The funds for this life changing surgery were provided by the Genesis Foundation and Paridhi now leads a happy and healthy life.

Baby of Vijaylakshmi

Baby of Vijaylakshmi, only three months old was born in Andhra Pradesh. He was having severe narrowing of the Aortic Valve from the first day of his birth. A local doctor referred him to Madras Medical Mission where he underwent an Aortic Valvotomy, which involves opening of the Aortic Valve. Unfortunately, a few days later he developed an infection and was admitted into ICU. As days went on the infection did not reduce, so the doctors decided to operate on the child. He underwent an extremely complex surgery called Ross Procedure, where the aortic valve is removed and replaced by the pulmonary valve. The baby has been shifted to a ward now and is slowly moving in the direction of recovery. He is the only child to Srinivasan and Vijaylakshmi, and they were willing to go to any extent to seek for help to pay for their son’s surgery. He works as an auto driver and brings home Rs 5000 per month, with which it was impossible to put together the funds required for all medical costs.